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Long COVID Moderate → somewhat betterIll 15 months before improving or writing

Long COVID heart and chest pain, somewhat better after antihistamines, low-histamine diet

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
15 months
Last post
Jun 2021
In their words
  • Condition: Long COVIDI’ve been going through this for a year and 3 months also. In context ↗
  • At worst: ModerateI was on a mix between beta blockers, ace inhibitors, and a diuretic for 8 months while my heart was in failure. In context ↗
  • Now: Somewhat betterI am better than I was but I’m still no where near what I used to be. I’m about 40% of what I used to be In context ↗
  • Began after: COVIDthey discovered I had cardiomyopathy from covid In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

After COVID-19 they developed cardiomyopathy with arrhythmia and chest pain and spent eight months on beta blockers, ACE inhibitors and a diuretic. Their heart recovered and they came off the drugs, though orthostatic hypotension took about four months to settle. Fifteen months in they felt about 40% of their former self, crediting H1/H2 antihistamines, a low-histamine diet, infrared sauna and meditation.

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Asking aboutSummit 17778’s story

What they tried

Their words about each treatment
  • beta blockers · HelpedI will say that the beta blockers never helped my chest pain though. They just gave my heart a break from working too hard while it was healing from the cardiomyopathy. In context ↗
  • ace inhibitors · Not saidI was on a mix between beta blockers, ace inhibitors, and a diuretic for 8 months while my heart was in failure. In context ↗
  • a diuretic · Not saidI have noticed I pee a lot more after so I’m not sure if that’s an after effect from the beta blockers or probably the diuretic. In context ↗
  • potassium/electrolytes and hydration · HelpedTaking more potassium/electrolytes and making sure I was hydrated while watching what I was eating helped with the arrhythmias In context ↗
  • antihistamines H1 · Helpedwhat’s worked the most is taking antihistamines H1 H2 In context ↗
  • low histamine diet · Helpedeating a low histamine diet In context ↗
  • infrared sauna · Helpedthe antihistamines are helping the most and the infrared sauna. I always feel a little worse the day after but then the days proceeding I start to get more energy. In context ↗
  • meditation/breathing · Helpedmeditation/breathing to reset my nervous system In context ↗
  • Time · HelpedTime but I have noticed other things do help a little. In context ↗

Approaches: H1 antihistamines · H2 blockers · Alternative therapies · Diet · Mind-body practices

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
March 2020COVID-19 infectionthey discovered I had cardiomyopathy from covid In context ↗Not stated
2020heart failure, on beta blockers, ACE inhibitors and a diuretic for 8 months, dizzy on the heart medsI was on a mix between beta blockers, ace inhibitors, and a diuretic for 8 months while my heart was in failure. In context ↗Not stated
early 2021heart recovered, ejection fraction normal, off heart medicationIt’s better now (my ejection fraction is back to normal and Im off beta blockers/heart meds) In context ↗Not stated
2021-06-23better than at worst but still about 40% of former selfI am better than I was but I’m still no where near what I used to be. I’m about 40% of what I used to be In context ↗ModerateH1 antihistamines (unspecified)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Heart symptoms & palpitationsI had/have all of those symptoms and they discovered I had cardiomyopathy from covid. In context ↗
  • POTS & dysautonomiaI had some orthostatic hypotension getting off the beta blockers. But it mellowed out after about 4 months. In context ↗

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