ME/CFS
Outcome unclear
ME/CFS desk pain; legs-up couch, heating pads and a medication trial
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Mar 2024
In their words
- At worst: Mild
A standard work desk is too painful for me.
In context ↗
Summary
A Reddit user in r/cfs describes pain that makes a standard work desk painful, so they sit on a couch with legs elevated and heating pads while using a laptop or watching TV. They tried a medication: the first dose felt like a miracle, but later doses only made them more aware of tiredness, caused impatience and worsened jaw clenching and crashes, so they never refilled the prescription.
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What they tried
Also tried
double-wide ottoman with a twin-sized low voltage heated mattress pad· Helpedmodafinil· Worse
Their words about each treatment
- double-wide ottoman with a twin-sized low voltage heated mattress pad · Helped
When sitting on the couch, I can elevate my legs and the heated pad provides gentle warmth on my legs. ... Heating pad on my back too; it helps a lot
In context ↗ - modafinil · Worse
My first dose felt like a miracle. Each subsequent dose just made me extra aware of how tired I was. It also made me feel impatient vs. productive, and worsened my jaw clenching/teeth grinding. And crashes got worse. I never refilled the prescription.
In context ↗
Adverse events
- Modafinil / armodafinil“worsened my jaw clenching/teeth grinding” In context ↗ Side effects
- Modafinil / armodafinil“And crashes got worse.” In context ↗ Made symptoms worse
- Modafinil / armodafinil“It also made me feel impatient vs. productive” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
A standard work desk is too painful for me.
In context ↗