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Long COVID Moderate → no benefitIll for 5 years

Months of severe long COVID, then POTS and neuropathy; still debilitating

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
5 years
Last post
Aug 2026
In their words
  • Condition: Long COVIDI later developed POTS and small fiber neuropathy and still deal with debilitating dysautonomia and fatigue. In context ↗
  • At worst: ModerateI basically have no life and I used to be a very active happy person. In context ↗
  • Now: No benefitI later developed POTS and small fiber neuropathy and still deal with debilitating dysautonomia and fatigue. In context ↗
  • Began after: a vaccinationThe day after my COVID vaccine in 2021, lymph nodes all over my body swelled up
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

A COVID vaccine in 2021 was followed the next day by swollen lymph nodes and months of illness severe enough that a biopsy was needed to rule out lymphoma. They later developed POTS and small fiber neuropathy and by 2026 still had debilitating dysautonomia and fatigue, saying they had no life compared with their previously active self. In June 2026 a first week of Zoloft for anxiety felt as if it might kill them.

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Asking aboutSandpiper 20004’s story

What they tried

Their words about each treatment
  • Zoloft · Not saidI’m on week one of Zoloft and I feel like it might kill me In context ↗
  • COVID vaccination as treatment · Not saidThe day after my COVID vaccine in 2021, lymph nodes all over my body swelled up, I was sick for months, it was so bad, I ended up needing a biopsy to rule out lymphoma. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
2021COVID vaccine; next day lymph nodes swelled all over, sick for monthsThe day after my COVID vaccine in 2021, lymph nodes all over my body swelled up, I was sick for months In context ↗Not stated
laterdeveloped POTS and small fiber neuropathyI later developed POTS and small fiber neuropathy In context ↗Not stated
2026-08-10still debilitating dysautonomia and fatigue, no lifestill deal with debilitating dysautonomia and fatigue. I basically have no life In context ↗Moderate

Adverse events

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiaI later developed POTS and small fiber neuropathy and still deal with debilitating dysautonomia In context ↗
  • Neuropathy & tinglingsmall fiber neuropathy In context ↗
  • Flu-like symptomslymph nodes all over my body swelled up, I was sick for months In context ↗
  • Anxiety & low moodI gave in and decided to try anxiety meds. In context ↗

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