ME/CFS
Severe → no benefit
ME/CFS: bedbound for days after an hour out, unable to sit up, resting no help
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I just got the diagnosis but been resting/stop working for 3 months.
In context ↗ - At worst: Severe
I can’t sit up but if I lie down too much it hurts.
In context ↗ - Now: No benefit
somehow it still gets worse and worse. Im not doing any better.
In context ↗
Summary
Recently diagnosed with ME/CFS, the user had stopped working for three months and had quit college and socialising, and was bedbound for days after an hour out. Resting brought no improvement and things kept getting worse: by October 2026 they could not sit up, used a power chair, and could no longer watch shows or listen to music. They blamed the illness for their low mood and said few doctors in their region knew ME/CFS.
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What they tried
Their words about each treatment
- resting/stop working · No change
I try to rest as much as possible. I quit job, college, social. I do nothing except basic things. but somehow it still gets worse and worse.
In context ↗ - power chair · Helped
I’m loving using her so far, even for short distance like bed to bathroom.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | Attending class and work, with hospital admissions or two days bedbound afterwardswhen I try to attend class or go to work, I will always be admitted to the hospitals or be bed bound for 2 daysIn context ↗ | Mild |
| 2026-09-24 | Worsening despite three months of rest; one hour out leaves them bedbound for daysEven with resting, Im not feeling any better tho. It’s getting worse actually.In context ↗ | Severe |
| 2026-10-17 | Cannot sit up; using a power chair even from bed to bathroom; worse despite doing nothingI can’t sit up but if I lie down too much it hurts.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I eating out for 1 hour, I will be bed bound for days
In context ↗ - Pain & fibromyalgia
I can’t sit up but if I lie down too much it hurts.
In context ↗ - Light & noise sensitivity
I can’t watch my fav shows or even listen to my fav songs.
In context ↗ - Anxiety & low mood
This stupid thing makes me depressed.
In context ↗