Miruvor
Sign up
ME/CFS Mild → no benefit

Severe memory loss and 12-hour sleeps with ME/CFS, still treating symptoms only

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Jan 2021
In their words
  • Condition: ME/CFSSo glad I found this sub though. In context ↗
  • At worst: MildI literally sleep 12hrs unless I absolutely have to go to work. In context ↗
  • Now: No benefitfor now just treating the symptoms is gonna have to do In context ↗
  • Began after: nothing they could nameI really want to get down to the root cause but for now just treating the symptoms is gonna have to do.
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

A former college football player and powerlifter described years of severe memory loss, sleeping 12 hours unless they had to work, and dragging themselves through days. They linked their problems partly to four football concussions and a past opiate addiction. TRT, B12 injections, Provigil and Adderall each helped a little, and bromantane with L-tyrosine was their go-to for getting going. They were still treating symptoms only.

Ask Miruvor AI

Asking aboutLynx 28955’s story

What they tried

Their words about each treatment
  • TRT · HelpedDr put me on TRT and b12 injections. Helped a bit. In context ↗
  • Provigil · HelpedI tried Provigil. Helped some. In context ↗
  • Adderall · HelpedAdderall ofc helped a bit. In context ↗
  • Bromantane · HelpedMy go-to is Bromantane and L-Tyrosine though. It absolutely helps me at least get going In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—memory badly affected, sleeping 12 hours a day, no longer liftingMy memory was so bad there were large parts of my high school years and after missing. In context ↗Mild
2021-01-21TRT, B12, Provigil and Adderall helped a little; bromantane and L-tyrosine now get them going, still treating symptoms onlyIt absolutely helps me at least get going and “fake the funk” throughout the day. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Brain fogMy memory was so bad there were large parts of my high school years and after missing. Short term memory was also shot In context ↗
  • Sleep problemsI literally sleep 12hrs unless I absolutely have to go to work. In context ↗

Ask Miruvor AI

Asking aboutLynx 28955’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime