ME/CFS
Outcome unclear
Suspected ME/CFS, daily exhaustion and heavy arms, no diagnosis or treatment reported
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- May 2023
In their words
- Condition: ME/CFS
I've been having a lot of suspicions that I have ME/CFS.
In context ↗ - At worst: Moderate
The only way i can feel better is if i take a 2-4 hour nap. This is almost an everyday thing at this point.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
In May 2023 a Reddit user posted in r/cfs that they suspected ME/CFS, having been diagnosed with POTS in November 2022. They felt horrible almost daily, with exhaustion, arms that felt like they weighed a ton and difficulty focusing, and needed two- to four-hour naps. A car trip to the store left them needing sleep, and fatigue from walks or chores came the next day. They had no ME/CFS diagnosis and did not report treatment or improvement.
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What they tried
Also tried
Their words about each treatment
- 2-4 hour nap · Helped
The only way i can feel better is if i take a 2-4 hour nap.
In context ↗ - pacing · Not said
I'm having a hard time knowing if i'm pacing myself or pushing it.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| November 2022 | POTS diagnosed; ME/CFS symptoms suspectedI was also diagnosed with POTs back in November of 2022 which could be why these symptoms are getting worse.In context ↗ | Not stated |
| 2023-05-15 | daily exhaustion needing 2-4 hour naps, no diagnosis or treatment yetAlmost everyday, no matter what I do, i always feel horrible. ... The only way i can feel better is if i take a 2-4 hour nap.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I don't feel tired right after going on walks or even just making my bed. I feel it the next day
In context ↗ - Brain fog
i cant focus on any activity im doing
In context ↗ - Sleep problems
The only way i can feel better is if i take a 2-4 hour nap.
In context ↗ - Muscle weakness
my arms feel like they weigh a ton
In context ↗ - POTS & dysautonomia
I was also diagnosed with POTs back in November of 2022
In context ↗