Long COVID
Moderate → no benefit
Long COVID fatigue and motor symptoms, no improvement with Adderall or modafinil
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jun 2025
In their words
- Condition: Long COVID
Secondary to this, I have long covid fatigue (a year after the lesion was found)
In context ↗ - At worst: Moderate
I'm not bedbound but hope this is helpful.
In context ↗ - Now: No benefit
I've had this long enough now that all the scary stuff has been ruled out, and I have not gotten meaningfully worse.
In context ↗ - Began after: COVID
I have long covid fatigue (a year after the lesion was found)
In context ↗
Summary
Alpine 11095 described long covid fatigue alongside motor symptoms that needed physiotherapy, and had seen neurologists for repeated MRIs without a diagnosis. Testing for orthostatic hypotension was inconclusive and they were under a cardiologist. They took Adderall and tried modafinil, which did not suit them, and stopped a blood pressure drug that made symptoms worse. They said they were not bedbound and had not got meaningfully worse.
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What they tried
Also tried
protein shakes· HelpedModafinil· Worsethe BP drug· WorseAdderall· Not saidPT for motor symptoms· Not said
Their words about each treatment
- Adderall · Not said
Taking Adderall, tried Modafinil but it wasn't great for me.
In context ↗ - Modafinil · Worse
tried Modafinil but it wasn't great for me
In context ↗ - PT for motor symptoms · Not said
I've had PT for my motor symptoms
In context ↗ - the BP drug · Worse
stopped taking the BP drug that made symptoms worse
In context ↗ - protein shakes · Helped
I needed to gain some weight and this has helped, no appetite due to Adderall.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | long covid fatigue with motor symptoms, no diagnosisI have long covid fatigue (a year after the lesion was found)In context ↗ | Moderate |
| 2025-06-09 | still ill but not bedboundI'm not bedbound but hope this is helpfulIn context ↗ | Moderate |
Adverse events
- “stopped taking the BP drug that made symptoms worse” In context ↗ Made symptoms worse
- Amphetamine salts (Adderall)“no appetite due to Adderall” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I've had PT for my motor symptoms
In context ↗