Miruvor
Sign up
Long COVID Severe → no benefit

Long COVID exhaustion needing a cane and rollator, still not at the better part

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill for
Not stated
Last post
Jul 2026
In their words
  • Condition: Long COVIDthe city I live in also has a devoted long covid clinic that helps me to manage all of this In context ↗
  • At worst: SevereI wish right now I could afford a motorized chair but having a cane and a rollator walker already make a major difference In context ↗
  • Now: No benefitI aint gonna say it gets better because I havent experienced the better part yet In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on

Request to remove this story

Summary

Hare 69184 described energy reserves 'low to nonexistent', needed a cane and rollator walker, and was sometimes too exhausted to hold a toothbrush. Speech, occupational and physical therapy were draining, and they were steadily reaching an ever-so-slightly better new baseline; a long COVID clinic helped manage things. Bupropion helped over two years; largely stopping alcohol brought no improvement. By mid-2026 they said they had not yet reached the better part.

Ask Miruvor AI

Asking aboutHare 69184’s story

What they tried

Their words about each treatment
  • speech therapy · Not saidI’m in speech therapy, occupational therapy, and physical therapy In context ↗
  • long covid clinic · Helpeda devoted long covid clinic that helps me to manage all of this In context ↗
  • Imodium · HelpedFor diarrhea I use Imodium as needed. Works VERY effectively but can make you swing the other way to constipation. In context ↗
  • mint tea · HelpedMint tea also helps me with both upset stomach and nausea. In context ↗
  • humming · HelpedHumming, as crazy as it sounds, also helps with nausea. In context ↗
  • breathing exercises · HelpedBreathing exercises are HUGE. I like to put my hands on my waist and belly breathe at the same time. In context ↗
  • extreme pacing · Not saidPace yourself with EVERYTHING. ... I’m talking extreme pacing. In context ↗
  • Ibuprofen · HelpedIbuprofen helps me with pain In context ↗
  • Acetaminophen · No changeAcetaminophen does jack all for me. In context ↗
  • cane and rollator walker · Helped a lotGetting mobility aids is SUCH a game changer. ... having a cane and a rollator walker already make a major difference. In context ↗
  • Welbutrin · HelpedWelbutrin has worked decently well for *me*. ... Ive been on it for a lil over two years. In context ↗
  • therapist · HelpedMine has been a HUGE support for me. In context ↗
  • stopped consuming alcohol · No changeI largely stopped consuming alcohol 2 years ago, but saw no improvement. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—onset of long COVID/CFS illness (date not given)my already low to nonexistent energy reserves In context ↗
2024-05-31speech, occupational and physical therapy gave a slightly better baselineI've been steadily getting to a new baseline that's ever so slightly better than my previous baseline In context ↗
2026-07-14still ill, using a cane and rollator walker, says they have not reached the better partI aint gonna say it gets better because I havent experienced the better part yet In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms

Ask Miruvor AI

Asking aboutHare 69184’s story

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime