Long COVID with racing heart, tremors and exhaustion, somewhat better after supplements
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 months
- Last post
- Sep 2024
In their words
- Condition: Long COVID
Like a lot of long haulers, or really anyone going through ####, I've been clinging to my spirituality.
In context ↗ - At worst: Severe
A month ago, I was scary bad. I'm still not doing 100%, but I'm to the point where I can sit up and walk thru my apartment
In context ↗ - Now: Somewhat better
Working on it myself. Far from perfect.
In context ↗ - Began after: COVID
When covid set it, a ringing in my left ear started.
In context ↗
Read from 34 of their posts and comments; links to the 21 this page draws on
Summary
A musician who fell ill in October 2021 with a ringing left ear, racing heart, tremors and exhaustion followed Dr Leo Galland's supplement list, crediting a B-complex most. She improved over three weeks, crashed after a supermarket trip and stopping the B vitamins, then could sit up and walk round her apartment by February 2022. In 2024 she wrote that it had not been long COVID but overmedication with thyroid Armour.
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What they tried
What they credit
Also tried
Their words about each treatment
- B complex with niacinamide (Nature's Made Stress B complex) · Helped
but was taking a b complex with niacinamide
In context ↗ - niacin · Not said
I took niacin over 24 hours ago and I'm itching like crazy even with aspirin
In context ↗ - resveratrol · Helped
I've been using it with some other stuff and I saw an improvement.
In context ↗ - Pedialyte and electrolytes · Helped
ALSO PEDIALYTE! I swear by that stuff.
In context ↗ - antihistamines · Helped
Antihistimines and NSAID's really help.
In context ↗ - rest · Helped
Some of us have to rest our way back to wellness.
In context ↗ - diaphragmatic breathing · Helped
Diaphramatic breathing helps
In context ↗ - Ativan · Helped
Ativan has helped a little.
In context ↗ - Triliptel (trileptal) · Helped
I started taking Triliptel, an anti seizure med and it helped a lot.
In context ↗ - propranolol · Helped
I take propranolol for palpitations/tachycardia issues
In context ↗ - Headspace meditation app · Helped
I had headspace for a while and it was helpful, but eventually it just wasn't helping.
In context ↗ - evening primrose oil (Barlean's) · Helped a lot
Evening primrose oil REALLY helped me!
In context ↗ - Dr. Leo Galland's recommended supplements · Helped a lot
I've been taking a lot of the supplements he suggested and they've really helped.
In context ↗ - low histamine diet · Not said
I don't think I have a hystimine issue, but I'm taking those precautions anyway
In context ↗ - physical therapy · Helped
I'm getting physical therapy that's helpful.
In context ↗ - dental day guard / bite guard · Not said
My dentist made me a great day guard
In context ↗ - prayer / spirituality · Not said
I'm trying really hard to think positively, pray
In context ↗ - D-ribose · Helped
D-ribose is great, I was told that by a fellow longhauler redditor.
In context ↗ - COVID vaccination as treatment · Not said
The double pfizer vax totally messed up my period as it did countless other people's. ... But then I got the booster and it messed it up even further.
In context ↗
Approaches: H1 antihistamines · POTS medication · Other drugs and medicines · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. The line stops at their last step that can be placed; how they are now is in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| October 2021 | long COVID began with ringing in the left ear and a racing heartWhen covid set it, a ringing in my left ear started.In context ↗ | Mild |
| early January 2022 | scary bad, before she could sit up and walk round her apartmentA month ago, I was scary bad.In context ↗ | Severe |
| January 2022 | three weeks of drastic improvement while on supplementsI was making drastic improvements for three weeks.In context ↗ | Moderate |
| late January 2022 | crashed after a supermarket trip and stopping her B complexI took a nose dive a week ago in my recovery and I had stopped taking thisIn context ↗ | Moderate |
| 3 February 2022 | able to sit up and walk round her apartmentI'm to the point where I can sit up and walk thru my apartment and I felt some energy today.In context ↗ | Moderate |
| 11 September 2024 | said it was not long COVID but overmedication with thyroid ArmourIt ends up I didn't have long covid.In context ↗ | Not stated |
Adverse events
- Niacin (vitamin B3)“I took niacin over 24 hours ago and I'm itching like crazy even with aspirin...” In context ↗ Side effects
- COVID vaccination as treatment“The double pfizer vax totally messed up my period as it did countless other people's. ... But then I got the booster and it messed it up even further.” In context ↗ Side effects
- “I was overmedicated with a dangerous thyroid medication Armour.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Tinnitus
When covid set it, a ringing in my left ear started.
In context ↗ - Heart symptoms & palpitations
My heart does gymnastics in there. I can't take it anymore. It hurts.
In context ↗ - Post-exertional malaise
A little physical exertion sets me back really bad.
In context ↗ - Anxiety & low mood
I sit down on the couch and then suddenly just start sobbing and moaning and crying.
In context ↗ - Sleep problems
I can't walk across a parking lot and I gotta sleep 12-14 hours.
In context ↗ - Breathlessness
I want to be able to breathe like a person
In context ↗
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