Long COVID with PEM and fatigue, no better after a long COVID program
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill for
- 4.5 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I developed Long Covid in 2022 after a bout with covid in March 2022.
In context ↗ - At worst: Mild
By the end of 2022 I couldn't stay awake after reading (I worked as a policy analyst) for 2 to 3 hours, even after drinking up to 16 shots of espresso.
In context ↗ - Now: No benefit
Unfortunately, we have not found a medication that helps yet ... but again, no help with the PEM/fatigue.
In context ↗ - Began after: COVID
I developed Long Covid in 2022 after a bout with covid in March 2022.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Crest 69968 developed long COVID after a COVID infection in March 2022; by the end of that year they could not stay awake after reading for two to three hours despite 16 shots of espresso. An Oregon Health Sciences University long COVID program gave counselling and symptom tracking but no medication that helped. The Visible app shows a Pace number of 7, and PEM and fatigue persist.
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What they tried
Also tried
Their words about each treatment
- espresso · No change
I couldn't stay awake after reading (I worked as a policy analyst) for 2 to 3 hours, even after drinking up to 16 shots of espresso
In context ↗ - Visible app · Not said
I've been using the Visible app since last November ... but again, no help with the PEM/fatigue.
In context ↗ - fasting · Helped
Fasting seems to help me push off the crash.
In context ↗ - melatonin · Helped
Melatonin 3 mg double if 3 doesn't work. That helps me when I've napped all day because of PEM
In context ↗ - Long Covid treatment program at Oregon Health Sciences University · Not said
I'm in the Long Covid treaty program at the Oregon Health Sciences University in Portland. ... Unfortunately, we have not found a medication that helps yet.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 9 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2022 | COVID-19 infection, then long COVIDI developed Long Covid in 2022 after a bout with covid in March 2022.In context ↗ | Not stated |
| end of 2022 | couldn't stay awake after 2-3 hours of reading despite 16 shots of espressoBy the end of 2022 I couldn't stay awake after reading (I worked as a policy analyst) for 2 to 3 hoursIn context ↗ | Mild |
| October 2026 | in a long COVID program, Visible app Pace score 7, still PEM and fatigueI'm able to do much more - on an irregular basis - than my Pace number (7) suggests I'm capable of - but again, no help with the PEM/fatigue.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
But then I crash early the next day, especially if I have breakfast.
In context ↗ - Sleep problems
By the end of 2022 I couldn't stay awake after reading (I worked as a policy analyst) for 2 to 3 hours
In context ↗ - Brain fog
counseling on tools and tricks to get around brain fog /memory issues
In context ↗ - Heart symptoms & palpitations
I was also diagnosed with sinus bradycardia at the end of 2022
In context ↗