ME/CFS
Mild → no benefitIll for 3 years
ME/CFS exhaustion and pain after glandular fever, still on stimulants to stay conscious
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 3 years
- Last post
- Feb 2025
In their words
- Condition: ME/CFS
i didn’t have cfs as severely until about a year of being on the pill though, so i can’t speak on how it’ll affect that aspect.
In context ↗ - At worst: Mild
i’d take naps in empty classrooms between classes ... now i have a 2-3hr gap in my classes so i go home and sleep between them
In context ↗ - Now: No benefit
i never really recovered from it because i had to continue going to school and work full time.
In context ↗ - Began after: glandular fever or EBV
getting mono my second year of college
Read from 9 of their posts and comments; links to the 8 this page draws on
Summary
Maple 43627 dated the worsening of lifelong exhaustion and chronic pain to glandular fever (mono) in 2022, in their second year of college, and never recovered while continuing school and full-time work. By 2023 they took naps between classes and planned naps in advance to avoid crashing, and by 2025 they relied on a line of stimulants just to stay a little conscious through work and the day. They had a hormonal IUD removed after it worsened their migraines and caused weight gain.
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What they tried
Also tried
naps· Helpedstimulants· Helpedwellbutrin· No changeblack coffee· No changered bull infusions· No changethe pill and a hormonal IUD· Worsemigraine ice gel hat· Not said
Their words about each treatment
- wellbutrin · No change
i’m on it as an antidepressant ... wellbutrin doesn’t do anything for my fatigue
In context ↗ - naps · Helped
i can’t function without them atp ... i have to plan my naps in advance, or i’ll crash mid event
In context ↗ - black coffee · No change
never did anything but i’ve never felt any sort of affect from caffeine ever
In context ↗ - red bull infusions · No change
not energy wise, just emotionally they were always there for me
In context ↗ - migraine ice gel hat · Not said
i sleep with a migraine ice gel hat on over my eyes
In context ↗ - the pill and a hormonal IUD · Worse
it got rid of my cycle entirely. both the pill and a hormonal IUD.
In context ↗ - stimulants · Helped
now i rely on a whole line of stimulants just to stay a little bit conscious
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | mono in second year of college made lifelong exhaustion and pain far worsegetting mono back in 2022 really just made it 1000x worseIn context ↗ | Mild |
| 2025-02-11 | still working, relying on stimulants to stay consciousnow i rely on a whole line of stimulants just to stay a little bit conscious and go to work and exist throughout the dayIn context ↗ | Mild |
Adverse events
- Bupropion (Wellbutrin)“made me nauseous and unable to eat much for a few weeks but other than that it’s fuckin great.” In context ↗ Gut side effects
- Bupropion (Wellbutrin)“i had to go off wellbutrin about a month after starting it because i couldn’t get a refill, and i absolutely had withdrawal symptoms.” In context ↗ Withdrawal problems
- IUD (hormonal or copper)“it was making my migraines worse” In context ↗ Made symptoms worse
- IUD (hormonal or copper)“made me gain over 80lbs in 2 years” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
when i have plans or anything like that i have to plan my naps in advance, or i’ll crash mid event
In context ↗ - Sleep problems
i can’t function without them atp.
In context ↗ - Pain & fibromyalgia
dealt with a lot of chronic pain my whole life
In context ↗ - Headaches & migraine
i sleep with a migraine ice gel hat on over my eyes
In context ↗ - Anxiety & low mood
i was having AWFUL depressive episodes
In context ↗