ME/CFS
Moderate → no benefitIll for 11 years
ME/CFS with fatigue and PEM, out only once or twice a week; antidepressants no help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 11 years
- Last post
- Mar 2026
In their words
- Condition: ME/CFS
the medication stopped the dizziness, fainting, heart pounding, etc but the fatigue & PEM stayed.
In context ↗ - At worst: Moderate
i can leave the house maybe once or twice a week. that's it.
In context ↗ - Now: No benefit
i can't work or volunteer either.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Canyon 53010, 18, had missed most of their education since age 7; by early 2026 they could leave the house only once or twice a week and could not work or study, and a medication stopped dizziness and fainting but not the fatigue or PEM. Catching pinworms from family in February 2026 caused a hard crash. Antidepressants did not help.
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What they tried
Also tried
Their words about each treatment
- medication · Helped
the medication stopped the dizziness, fainting, heart pounding, etc but the fatigue & PEM stayed
In context ↗ - anti-worm medication · Not said
we already have a stockpile of anti-worm medication
In context ↗ - anti-depressants · No change
i've been on many & even if it helps, it doesn't help with this
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2026-02-10 | caught pinworms from family and crashed hard for a weeki've felt so fucking ill and tired this week and... now i know why.In context ↗ | Severe |
| 2026-03-17 | still housebound, unable to sleep, low and lonelyi can leave the house maybe once or twice a week. that's it.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
i've been crashing so hard this week
In context ↗ - POTS & dysautonomia
the medication stopped the dizziness, fainting, heart pounding, etc
In context ↗ - Sleep problems
i haven't been able to sleep at all
In context ↗ - Brain fog
thinking is hard. moving is hard.
In context ↗ - Anxiety & low mood
i'm feeling very down at the moment
In context ↗