Unable to hold a job with ME/CFS, somewhat better on high-dose luteolin
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 17 years
- Last post
- Jun 2023
In their words
- Condition: ME/CFS
Has a response like this been documented with ME/CFS or just brain fog due to inflammation?
In context ↗ - At worst: Severe
uncontrollable hypersomnia of 14+ hours a day for decades ... a constant urge to be lying down horizontally with my head buried in a pillow
In context ↗ - Now: Somewhat better
my energy throughout the day is much improved. While I still spend most of the day in bed
In context ↗
Summary
A Reddit user ill for about 15 years could not hold a job for more than a couple of months and depended on ageing parents. For decades they slept 14 or more hours a day without feeling rested; in 2021 they called their health the most manageable in 15 years. After starting high-dose luteolin in 2023, sleep fell to about seven hours and daytime energy improved, though they still spent most of the day in bed.
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What they tried
What they credit
Their words about each treatment
- high dose luteolin supplement · Helped
I went from uncontrollable hypersomnia of 14+ hours a day for decades where I never felt refreshed or rested to about 7 hours a day. While I never wake up refreshed, I no longer do the zombie shuffle of dysfunction. Also, my energy throughout the day is much improved.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 15 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | chronic illness began, keeping them out of lasting workFor the past 10 years, I have been unable to hold a job more than a couple of months due to chronic illnesses.In context ↗ | Not stated | |
| for decades | uncontrollable hypersomnia, 14+ hours a day, never feeling rested, constant urge to lie downuncontrollable hypersomnia of 14+ hours a day for decades where I never felt refreshed or restedIn context ↗ | Severe | |
| 2021-05-15 | health at its most manageable in 15 years, still unable to hold a jobRight now, my health is as manageable as it has been in 15 years.In context ↗ | Severe | |
| 2023-06-17 | sleep fell from 14+ hours to about 7 hours a day and daytime energy improved, but still in bed most of the daymy energy throughout the day is much improvedIn context ↗ | Severe | Luteolin and flavonoid blends |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
uncontrollable hypersomnia of 14+ hours a day for decades where I never felt refreshed or rested
In context ↗ - Brain fog
it could help lessen the severity of brain fog
In context ↗
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