ME/CFS with brain fog, lethargy and fevers, much better after L-lysine and stopping gluten
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 24 years
- Last post
- Feb 2026
In their words
- Condition: ME/CFS
I was diagnosed with Chronic Fatigue Syndrome almost 20 years ago.
In context ↗ - Now: Much better
I am so much better now, only wished I had the info sooner!!!
In context ↗ - Began after: another virus
It’s triggered by latent virus activation, usually triggered by stress and trauma.
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
They were diagnosed with ME/CFS about 24 years ago after latent virus activation, having had a low-grade fever for six months beforehand. High-dose L-lysine (up to 10,000 mg daily, later 2,000–4,000 mg) was their biggest relief, clearing brain fog and lethargy; a few days off it brought symptoms back. Stopping gluten and chicken breasts ended their fevers and a two-year sinus infection, and by 2026 they reported being much better. Anxiety remained.
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What they tried
What they credit
Their words about each treatment
- L-Lysine · Helped a lot
It clears out the brain fog and the lethargy.
In context ↗ - Eat Right For Your Type (stopping gluten and chicken) · Helped
stopping Gluten and Chicken breasts, stopped my fevers and ended my two year long sinus infection
In context ↗ - B vitamins · Helped
B vitamins are very important as well.
In context ↗ - Medical marijuana (Indica) · Helped
I take Medical marijauna; Indica strain and CBD for help with anxiety.
In context ↗
Approaches: Amino acids and carnitine · Diet
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | CFS triggered by latent virus activationI was diagnosed with Chronic Fatigue Syndrome almost 20 years ago. It’s triggered by latent virus activation, usually triggered by stress and trauma.In context ↗ | Not stated | |
| before diagnosis | six months of low-grade fever, brain fog and lethargyI had a low grade fever for 6 months before I was diagnosed.In context ↗ | Not stated | |
| early on | high-dose L-lysine brought reliefL-Lysine was, and is the single biggest source of relief I have found. I took very high doses 10,000+ a day in the beginningIn context ↗ | Not stated | Lysine |
| 2022-04-10 | stopping gluten and chicken breasts stopped fevers and sinus infectionstopping Gluten and Chicken breasts, stopped my fevers and ended my two year long sinus infectionIn context ↗ | Not stated | Gluten-free diet |
| 2026-01-04 | much better after finding MTHFR variantsI am so much better now, only wished I had the info sooner!!!In context ↗ | Mild |
Adverse events
- Lysine“I personally can’t take more than 5,000 because of stomach distress.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
It clears out the brain fog and the lethargy.
In context ↗ - Temperature regulation
I had a low grade fever for 6 months before I was diagnosed.
In context ↗ - Anxiety & low mood
The L-Lysine however does not fix the anxiety.
In context ↗
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