Long COVID fatigue and nightly crises after relapse; antihistamines softened them
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 years
- Last post
- Sep 2026
In their words
- Condition: Long COVID
Some kind of long covid - but could it strike back one year after?
In context ↗ - At worst: Mild
Each time it took some month to recover incompletely, but enough to have a normal life again.
In context ↗ - Now: Relapsed
Stress triggered a new crisis of the same kind, but this time they happen *every night*.
In context ↗ - Began after: COVID
I had my first covid infection in spring 2022.
Read from 6 of their posts and comments; links to the 5 this page draws on
Summary
Bluebell 16433, 39, developed long COVID after a COVID infection in spring 2022, with fatigue, cognitive impairment, palpitations and loss of smell; two more infections in 2023 and 2025 were lighter. In spring 2026 covid-like crises began, and after an August breakup they came almost nightly while she worked full time. Daily antihistamines seemed to soften the crises; a sound protocol restored much of her smell but gave her tinnitus.
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What they tried
What they credit
Also tried
Their words about each treatment
- Bilastine (H1 antihistamine) · Helped
I started daily antihistamines (H1+H2). They probably did something.
In context ↗ - ketotifen · Not said
I doubled down on antihistamines, and added ketotifen, quercetin, vit C, omega 3. Not sure it does something or not.
In context ↗ - stopped all cigarette and alcohol · Not said
I stopped all cigarette and alcohol.
In context ↗ - Vipassana mediation · Helped
Things got significantly better for me after I started Vipassana mediation ( 10 days of meditation in total silence - about 100hrs).
In context ↗ - NSAID · No change
I trieds NSAID twice (actually a pretty strong one, that my father took pour rheumatoid arthritis) but It didn’t work.
In context ↗ - sound and safe protocol (by unyte) · Helped
it worked well for me and it gave me my smell back. I'd say I went from 50% to 85%.
In context ↗ - mycotherapy (naturopath, Pr Donatini theories) · Helped a lot
It was slow but it worked well, she put me back on my feets.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Mind-body practices · Supplements · Vagus nerve stimulation
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| spring 2022 | First COVID infection; a year off work to recover incompletelyI had my first covid infection in spring 2022. It took me one year to recover uncompletely from fatigue and cognitive dysfunctionIn context ↗ | Mild | |
| April 2023 | Second COVID infection, lighter, worked half her usual jobI had two more infections in april 2023 and july 2025. Same everything but lighter in intensity and recovery.In context ↗ | Mild | |
| July 2025 | Third COVID infection, lighter again | Mild | |
| spring 2026 | Three COVID-like crises in April, May and June without infectionThen this spring (2026), I had 3 "covid crisis" in april, may, and june.In context ↗ | Moderate | |
| summer 2026 | Next crisis a third of the intensity after daily H1+H2 antihistaminesThe next crisis was way softer so I though antihistamines were doing something.In context ↗ | Mild | Bilastine (Blexten, Bilaxten) |
| mid August 2026 | Crashed after a stressful breakup; crises became nightlyMid august, I broke up with my boyfriend. Stress triggered a new crisis of the same kind, but this time they happen *every night*.In context ↗ | Mild | |
| September 2026 | Nightly crises with full-time work; taking antihistamines, ketotifen, quercetin, vitamin C, omega 3I have resumed my full time work and my brain is not working properly.In context ↗ | Mild |
Adverse events
- Vagus nerve stimulation“Unfortunately the thing also gave me tinnitus ( that is very slowly resorbing, but unsure it will totally one day)” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
memory loss, unability to focus on anything
In context ↗ - Heart symptoms & palpitations
fatigue, papitations
In context ↗ - Gut problems
digestive issues
In context ↗ - Loss of smell or taste
it worked well for me and it gave me my smell back. I'd say I went from 50% to 85%.
In context ↗ - Mast cell (MCAS) & allergies
I think I became allegic around the time of my first covid
In context ↗ - Headaches & migraine
heavy fatigue, migraine, brainfog
In context ↗ - Anxiety & low mood
I am so sad and terrified for what’s coming next.
In context ↗ - Tinnitus
Unfortunately the thing also gave me tinnitus
In context ↗ - Temperature regulation
swelling veins, running nose, fever
In context ↗ - Flu-like symptoms
On the mornings I wake up with a reduced version of a covid.
In context ↗
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