ME/CFS
Somewhat betterIll 9.5 years before improving or writing
ME/CFS after glandular fever, somewhat better now but still crashes after overdoing things
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 9.5 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I’ve had chronic fatigue syndrome since late 2016 after catching glandular fever.
In context ↗ - Now: Somewhat better
I’m able to do a little more than I used to, but yesterday I had a crash and my body felt like lead
In context ↗ - Began after: glandular fever or EBV
I’ve had chronic fatigue syndrome since late 2016 after catching glandular fever.
In context ↗
Summary
Stream 60992 developed CFS after glandular fever in late 2016 and was diagnosed in 2017. Over the years they improved somewhat and by 2022 felt much better than at the start, though still tired and exhausted by noise. Stress after their father's emergency hospital visit caused a massive relapse in early 2025. By mid-2026 they could do a little more than before but still crashed for a day or two whenever they overdid things.
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Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| late 2016 | CFS began after glandular feverI’ve had chronic fatigue syndrome since late 2016 after catching glandular fever. It’s been a struggle and I’m way better than I wasIn context ↗ | Not stated |
| 2022-08-30 | much better than at the start but still tired and sound-sensitiveI’m way better than I was (but still tired)In context ↗ | Not stated |
| 2025-02-17 | massive relapse from stress after their dad went to the emergency departmentI think the stress has given me a massive relapse ... I feel like I’ve relapsed to how I was back in 2017 | Not stated |
| 2026-06-16 | able to do a little more than before, still crashes for a day or two after overdoing thingsI’m able to do a little more than I used toIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I get flares like these every time I overdo things a little. Mine last a day or two too.
In context ↗ - Brain fog
I was unable to remember words
In context ↗ - Light & noise sensitivity
if the telly is on a little louder than I like and people are talking too I feel like I can’t cope and it exhausts me
In context ↗ - Flu-like symptoms
had a painful gland in my neck and bad tonsil
In context ↗ - Muscle weakness
my body felt like lead
In context ↗