ME/CFS
Outcome unclear
Tiredness with ME/CFS made normal tasks hard; still unwell most of the time
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Apr 2022
In their words
- Condition: ME/CFS
I don’t have a diagnosis for CFS yet but it’s looking like that’s what I’ve got.
In context ↗ - At worst: Mild
10-20 minutes on the elliptical makes me feel pretty good ... I’ve been fitter, but it’s hard to keep up with when you feel like shit most of the time
In context ↗ - Began after: nothing they could name
before I started being too tired to do things normally
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Falcon 62136, a Reddit user in r/cfs, described tiredness that made normal things hard, with IBS, hormonal migraines and sore joints, and said in March 2022 they had no CFS diagnosis yet. By spring 2022 they could do 10-20 minutes on an elliptical and walk for an hour, though walking for an hour left them stiff and sore and they felt unwell most of the time. COVID vaccinations gave them full-body pain but they didn’t think they gave extra fatigue.
Ask Miruvor AI
What they tried
Also tried
probiotics· Helpedmouldable mouth guards· Helpedmild steroid nasal spray· Helped10-20 minutes on the elliptical· Helpedcombined pill· Helped · wore offmini pill· Helpedfluoxetine· Helpedtransexamic acid· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- probiotics · Helped
My IBS is mostly under control with probiotics
In context ↗ - mouldable mouth guards · Helped
I got myself those mouldable mouth guards on Amazon. ... I think that helped.
- mild steroid nasal spray · Helped
I had stiff elbow(s) but that went away with mild steroid nasal spray use
In context ↗ - 10-20 minutes on the elliptical · Helped
10-20 minutes on the elliptical makes me feel pretty good
In context ↗ - combined pill · Helped
I got hormonal migraines and the combined pill solved it for a while, then I lost weight and they came back way worse
In context ↗ - mini pill · Helped
I’m on the mini pill now and I think that works for me, almost no bleeding other than the mildest spotting 1 or 2x per year
In context ↗ - transexamic acid · Not said
they had me take transexamic acid for a few days instead
In context ↗ - fluoxetine · Helped
I take fluoxetine ... a lot less nuts.
In context ↗ - COVID vaccination as treatment · Not said
I had two Pfizers and a Moderna booster, I didn’t get extra fatigue I don’t think, but oh my god the full body pain
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| years ago | started being too tired to do things normally; later sore ankle and IBSI started taking the pill years ago before I started being too tired to do things normallyIn context ↗ | Mild |
| 2022-03-28 | able to do 10-20 minutes on the elliptical; an hour's walk left them stiff and sore10-20 minutes on the elliptical makes me feel pretty good, discovered walking after doesn’t make everything sore.In context ↗ | Mild |
| 2022-04-29 | still knitting a few rows at a time, tiring quickly; uses fan, cooling blanket and headphonesI knit on and off, sometimes I get up and sit and the table and knit a couple rows of jumper or whatever, I find I get tired again pretty quick.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“I had two Pfizers and a Moderna booster, I didn’t get extra fatigue I don’t think, but oh my god the full body pain” In context ↗ Side effects
Symptoms mentioned
Gut problemsHeadaches & migraineLight & noise sensitivityPain & fibromyalgiaSleep problemsTemperature regulation
Their words about their symptoms
- Gut problems
My IBS is mostly under control with probiotics
In context ↗ - Pain & fibromyalgia
I get one stiff/sore ankle as well and I’ve had that for a few years
In context ↗ - Headaches & migraine
I got hormonal migraines and the combined pill solved it for a while, then I lost weight and they came back way worse.
In context ↗ - Sleep problems
I missed one the other day cause I forgot to get a new prescription, and I’m having a bad time with sleep.
In context ↗ - Temperature regulation
I’m usually too warm most of the time
In context ↗ - Light & noise sensitivity
I’ve also got fancy Sony house cancelling headphones
In context ↗