Stuck in bed with ME/CFS for almost five months, now recovered after Mestonin
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- May 2026
In their words
- Condition: ME/CFS
clinical study for chronic fatigue
In context ↗ - At worst: Severe
stuck in bed for almost 5 months straight, couldn't even imagine getting up for more than bathroom trips
In context ↗ - Now: Recovered
walking for hours again and staying active through whole day
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user with chronic fatigue spent almost five months stuck in bed, getting up only for bathroom trips. In a clinical trial they were assigned Mestonin, starting at a quarter tablet (15 mg) once daily and building to three times a day. They reported walking for hours again and staying active all day, saying the first treatment they were given worked and gave them back their life.
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What they tried
What they credit
Their words about each treatment
- Mestonin · Helped a lot
Got assigned to try Mestonin and the results completely blew my mind.
In context ↗
Approaches: POTS medication
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | bedridden, only getting up for the bathroomBefore starting, I was stuck in bed for almost 5 months straight, couldn't even imagine getting up for more than bathroom trips.In context ↗ |
| 2026-05-26 | walking for hours and active all day on Mestinon in a clinical trialNow I'm walking for hours again and staying active through whole day.In context ↗ |
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