My recovery after my one and only crash.
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 10 years
- Published
- Dec 2016
Summary
Combined a strict elimination diet (no gluten, dairy, processed food or fructose) with Lyrica at 225mg per day, low-dose naltrexone, ketotifen, antihistamines, B12 with methylfolate, rifaximin plus neomycin for SIBO, hyperbaric oxygen, and later tDCS. Illness progressed over about ten years from myofascial pain to fibromyalgia to full ME/CFS, reaching a point of being unable to tolerate sheets touching his legs. By the end of 2016 could go out dancing all night without needing tramadol, with brain fog, light sensitivity and noise sensitivity gone, though pain and fatigue only partly resolved. Describes the recovery as continuous but uneven, with a bad relapse-like week after stopping CoQ10, and says he keeps to the diet religiously on an ongoing basis.
What they credit
Credits B12 injections and methylation, CoQ10 / ubiquinol, Elimination and ketogenic diets, Hyperbaric oxygen (HBOT), Ketotifen / cromolyn, Low-dose naltrexone, Rifaximin / Xifaxan, rTMS / tDCS / transcranial stimulation.
Symptoms mentioned
Symptoms: Brain fog, Gut problems, Light & noise sensitivity, Pain & fibromyalgia.
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