ME/CFS
Outcome unclearIll for 13 years
ME/CFS for 13 years; four weeks after COVID, breathless with simple activity
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 13 years
- Last post
- Aug 2023
In their words
- Condition: ME/CFS
I've had cfs for 13 years and avoided covid for until 4 weeks ago!
In context ↗ - At worst: Moderate
Holding my 11 month for 10 minutes is exhausting and I will have worse breathing for hours
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A Reddit user who had had CFS for 13 years avoided COVID-19 until August 2023, when they caught it. They did not get typical flu-like symptoms but an intense migraine, then intense tiredness and shortness of breath. Four weeks on they were generally improving but breathlessness remained and worsened with simple activity; holding their 11-month-old for ten minutes left them exhausted and breathless for hours.
Ask Miruvor AI
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| onset | onset of CFSI've had cfs for 13 yearsIn context ↗ | Not stated |
| about 4 weeks before 2023-08-30 (early August 2023) | caught COVID-19 for the first time; intense migraine, tiredness and breathlessnessI didn't get it as flu like as my husband and other and instead just had an intense migraine and then intense tiredness and shortness of breath.In context ↗ | Not stated |
| 2023-08-30 | generally improving four weeks after COVID but breathlessness persists and worsens with activitywhile I'm generally improving, the shortness of breath is still there and gets worse with simple activities.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
instead just had an intense migraine
In context ↗ - Breathlessness
the shortness of breath is still there and gets worse with simple activities
In context ↗ - Post-exertional malaise
Holding my 11 month for 10 minutes is exhausting and I will have worse breathing for hours
In context ↗