ME/CFS
Mild → no benefitIll for 13 years
ME/CFS for 12 years, dizzy on exertion, no energy to cook, no improvement
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 13 years
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I’ve been experiencing chronic fatigue for 12 years.
In context ↗ - At worst: Mild
If I work long stretches at work (mostly standing) my day off consists of sleeping in darkness and waiting out the chronic pain flare.
In context ↗ - Now: No benefit
has not improved whatsoever
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
Cedar 65634 had chronic fatigue for 12 years from age 15, with normal labs and no improvement; exertion burned them out and made them dizzy and light-headed, and they had no energy to cook. Their doctor told them to exercise more. They bought themselves a cane in Canada, which they said helped tremendously, though long standing shifts at work left them sleeping in darkness on days off to wait out cervicogenic headache flares.
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What they tried
Also tried
cane· HelpedOTC medications· No change
Their words about each treatment
- OTC medications · No change
my chronic pain (cervicogenic headaches) has been triggered and won’t go away with OTC medications
In context ↗ - cane · Helped
It took me forever to admit that I needed a cane sometimes, but it has helped me tremendously.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 15 | chronic fatigue began and never improvedthis fatigue started when I was 15, has not improved whatsoeverIn context ↗ | Mild |
| 2024-10-21 | started using a cane they bought themselves, which helpedIt took me forever to admit that I needed a cane sometimes, but it has helped me tremendously. I had to buy it myself (Canada) but it was worth it.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Exercise burns me out faster
In context ↗ - POTS & dysautonomia
I feel dizzy and light headed if I exert too much
In context ↗ - Headaches & migraine
my chronic pain (cervicogenic headaches) has been triggered
In context ↗ - Pain & fibromyalgia
waiting out the chronic pain flare
In context ↗ - Anxiety & low mood
my anxiety stems from childhood due to neglect and abandonment
In context ↗