Completely disabled by long COVID, somewhat better with meclizine and antihistamines
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Aug 2024
In their words
- Condition: Long COVID
Mine have been low since getting covid/ LC
In context ↗ - At worst: Severe
Covid hit and I am completely disabled
In context ↗ - Now: Somewhat better
I my Dr. prescribed Meclizine for the dizziness and it has been a lifesaver for me
In context ↗ - Began after: COVID
Mine have been low since getting covid/ LC
In context ↗
Read from 8 of their posts and comments; links to the 8 this page draws on
Summary
After surgery in 2003 they developed adrenal insufficiency, fibromyalgia and chronic fatigue, recovered from the chronic fatigue and came off steroids, then became completely disabled after covid. Vertigo left them with regular dizziness, and on bad days they get extreme lightheadedness, headache, blurry vision and fatigue. Meclizine, antihistamines and ginger candy each eased some symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- Airborne · Helped
The one thing that helps me to bounce back faster is taking a lot of Airborne.
In context ↗ - meds for thyroid · Not said
Mine have been low since getting covid/ LC . On meds for both.
In context ↗ - steroids for Adrenal Insufficiency · Not said
I recovered from the chronic fatigue and was able to stop taking steroids for Adrenal Insuficiency
In context ↗ - Tramadol · Not said
Tramadol doesn’t work nearly as well now.
In context ↗ - Adderall · Not said
That’s bad but Adderall doesn’t work as well for me as well. And it only lady about an hour.
In context ↗ - Meclizine · Helped a lot
I my Dr. prescribed Meclizine for the dizziness and it has been a lifesaver for me.
In context ↗ - Pepcid · Helped a lot
Taking Pepcid and another antihistamine (ie Zyrtec or Allegra) totally stopped the flushing and sweating .
In context ↗ - Gin Gins the ginger candy · Helped
It finally went away when I started eating a ton of Gin Gins the ginger candy.
In context ↗ - Sudafed · Helped
I found a box of sudafed that I had forgotten about and took 1. In an hour my headache was gone and blurry vision was gone.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2003 | surgery triggered adrenal insufficiency, fibromyalgia and chronic fatigueAdrenal Insufficiency, Fibromyalgia & chronic fatigue for me after surgery in 2003.In context ↗ | Not stated |
| after 2003 | recovered from the chronic fatigue and stopped steroidsI recovered from the chronic fatigue and was able to stop taking steroids for Adrenal InsuficiencyIn context ↗ | Near normal |
| — | Covid; now completely disabledCovid hit and I am completely disabledIn context ↗ | Severe |
Adverse events
- Meclizine (Bonine, Antivert)“It made me a little more drowsy than usual at first but I can take it now w/o getting sleepy.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have had Vertigo, loss of hearing in one ear and fullness. ... Now I have dizziness regularly.
In context ↗ - Headaches & migraine
extreme lightheadedness, headache and blurry vision, fatigue
In context ↗ - Vision problems
In an hour my headache was gone and blurry vision was gone.
In context ↗ - Loss of smell or taste
that hasnt helped my already impaired sense of smell
In context ↗ - Pain & fibromyalgia
Fibromyalgia & chronic fatigue for me after surgery in 2003
In context ↗ - Gut problems
my main symptoms were gastro. It finally went away
In context ↗ - Anxiety & low mood
Totally stopped unbearable anxiety.
In context ↗ - Mast cell (MCAS) & allergies
totally stopped the flushing and sweating
In context ↗
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