Long COVID with constant facial nerve pain, now much better and able to exercise again
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Feb 2022
In their words
- Condition: Long COVID
my journey started in August 2021 with a mild infection
In context ↗ - At worst: Moderate
I had to stop working after that because of constant pain and since then I'm worried of further crashes that's why I reduced my activities to a minimum
In context ↗ - Now: Much better
All the other symptoms have vanished by now I even can exercise again but the nerve pain is still awful
In context ↗ - Began after: COVID
my journey started in August 2021 with a mild infection
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
A Reddit user fell ill in August 2021 after a mild infection with dizziness, a racing heart, fatigue and headaches. A crash while trying to return to normal life brought constant facial nerve pain and forced them to stop working and cut activity to a minimum. By February 2022 all symptoms except nerve pain in the face and right foot had gone and they could exercise again; amitriptyline and Lyrica had not helped.
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What they tried
What they credit
Also tried
Their words about each treatment
- being more active and doing sports · Much worse
Yes I definitely overdid it and I have since then this almost constant facial pain. Of course this happened after a doctor told me to be more active and to do sports...
In context ↗ - reducing activities to a minimum · Helped
I reduced my activities to a minimum and haven't crashed again
In context ↗ - amitryptiline · No change
So far I've tried amitryptiline and lyrica but they both didn't help.
In context ↗ - lion's Mane · No change
I've tried lion's Mane but without any effect
In context ↗ - B complex · Not said
I'm taking a B complex already
In context ↗
Approaches: Pacing
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| August 2021 | fell ill after a mild infection with dizziness, racing heart, fatigue and headachemy journey started in August 2021 with a mild infectionIn context ↗ |
| 2021-11-09 | crashed after trying to get back to old life, developed constant facial nerve pain and stopped workingI had to stop working after that because of constant pain and since then I'm worried of further crashes that's why I reduced my activities to a minimumIn context ↗ |
| 2022-02-19 | all symptoms except nerve pain gone; could exercise againAll the other symptoms have vanished by now I even can exercise again but the nerve pain is still awfulIn context ↗ |
Adverse events
- Everyday exercise and activity“Yes I definitely overdid it and I have since then this almost constant facial pain. Of course this happened after a doctor told me to be more active and to do sports...” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I did have one major crash when I was trying hard getting back to my old life and indeed felt fatigued the day after
In context ↗ - Headaches & migraine
my main symptoms for the first three months were dizziness, heart palpitations, fast heart beat, fatigue and headache
In context ↗ - Heart symptoms & palpitations
heart palpitations, fast heart beat
In context ↗ - Neuropathy & tingling
the nerve pain is still awful
In context ↗
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