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ME/CFS Outcome unclear

Constant aching with ME/CFS and no improvement after a low-dose medication trial

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Nov 2024
In their words
  • Condition: ME/CFSYes, they're constantly achey even with regular massage, magnesium supplements and stretching. In context ↗
  • At worst: MildI work in healthcare so it's as much to protect me as others. In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Kestrel 65683 reported constant aching that persisted despite massage, magnesium supplements and stretching, and worked in healthcare. A trial of a medication at a below-antidepressant dose, for another problem, flattened them and left them barely able to function; they said they get all side effects from medications except their ADHD meds. Yearly vaccinations caused no reaction beyond an occasional sore arm. No improvement was reported.

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Asking aboutKestrel 65683’s story

What they tried

Their words about each treatment
  • magnesium supplements · No changethey're constantly achey even with regular massage, magnesium supplements and stretching In context ↗
  • Duloxetine · WorseI was absolutely flattened by it, could barely function In context ↗
  • yearly shots · No changeI never have reactions to vaccinations, other than a sore arm occasionally In context ↗
  • adhd meds · Not saidexcept for my adhd meds, to which I have none In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they wereAfter
2021-08-27ongoing aching calves and crampsYes, they're constantly achey even with regular massage, magnesium supplements and stretching. In context ↗Mild
2023-02-10flattened by duloxetine trialI was absolutely flattened by it, could barely function and wasn't even on anything close to an antidepressanr dose In context ↗SevereDuloxetine (Cymbalta)
2024-11-15working in healthcare, yearly vaccines without reactionsalways get my yearly shots. I work in healthcare so it's as much to protect me as others. In context ↗Mild

Adverse events

  • Duloxetine (Cymbalta)“I was absolutely flattened by it, could barely function and wasn't even on anything close to an antidepressanr dose” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiathey're constantly achey even with regular massage, magnesium supplements and stretching In context ↗

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Asking aboutKestrel 65683’s story

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