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Long COVID Severe → much betterIll 7 months before improving or writing

Too sick to get out of bed for months with long COVID, now much better after Paxlovid

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
7 months
Last post
Feb 2023
In their words
  • Condition: Long COVIDI tested positive jan 3rd. Sicker than a dog til end of March. ... All that's left is 75% lungs back In context ↗
  • At worst: SevereI couldn't breathe. ... Too sick to get out of bed and go to drs. In context ↗
  • Now: Much betterAll that's left is 75% lungs back, i get winded while doing cardio, or just walking fast In context ↗
  • Began after: COVIDI tested positive jan 3rd.
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

A Reddit user in r/covidlonghaulers caught COVID in January 2022, was too sick to get out of bed for months and had oxygen drop to 82% one night. By August 2022 about 75% of lung function was back, with breathlessness on cardio and easy tears; by January 2023 they walked about 6,000 steps a day. A second infection in early 2023 sent them downhill fast, but Paxlovid, which they qualified for as over 50, worked like a charm.

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What they tried

Their words about each treatment
  • walking / building up steps · Not saidI've been walking around 6k steps a day. Trying to go a bit faster now. Just building myself up In context ↗
  • paxlovid · Helped a lotCalled Dr and got straight on paxlovid ... it worked like a charm In context ↗

Approaches: Antivirals

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2022-01-03COVID-19 infection, bedridden and breathlessI tested positive jan 3rd. Sicker than a dog til end of March. In context ↗Severe
2022-08-01mostly better, lungs about 75%, winded with cardioNow it's almost Aug. All that's left is 75% lungs back In context ↗Mild
2023-01-24walking about 6,000 steps a day and building up speedI've been walking around 6k steps a day. In context ↗Mild
2023-02-22second COVID infection, going downhill fastI was going downhill so fast 2nd time around and was scared too. In context ↗Not stated
2023-02-22Paxlovid turned the second infection aroundgot straight on paxlovid ... it worked like a charm In context ↗MildPaxlovid / nirmatrelvir

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessi get winded while doing cardio, or just walking fast In context ↗
  • Anxiety & low moodI'm very VERY emotional and weepy. I can cry at a drop of a hat. In context ↗

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