ME/CFS
No benefit
ME/CFS with fatigue, food intolerances and brain fog, no benefit from mould treatment
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
I have a diagnosis for the cause of my chronic fatigue
In context ↗ - Now: No benefit
in the end here, I'm left with three foods I can eat without feeling like I'm going to die and it's been that way for many years now
In context ↗ - Began after: mould or toxic exposure
That's what's been causing everything to go wrong in my body including fatigue and food intolerances.
Read from 12 of their posts and comments; links to the 10 this page draws on
Summary
They had CFS with fatigue, food intolerances and brain fog, and in late 2015 were diagnosed with mycotoxin illness from toxic mould exposure, which they believed caused everything. A few months into mould treatment they reported small improvements in some symptoms but not their energy, and later cured their GERD by quitting Tums and PPIs and taking HCL drops. By 2019 they could eat only three foods and reacted strongly to a DAO supplement.
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What they tried
Also tried
Their words about each treatment
- treatment for mycotoxin illness · Helped
I'm noticing some small improvements with various symptoms although not with my energy yet.
In context ↗ - infusions of saline, magnesium, vita C & folate · No change
Me and a friend I met at my infusion center who also has CFS have had infusions of the above and they haven't helped us.
In context ↗ - Tums and PPI's · No change
They didn't do a whole lot for me
In context ↗ - HCL drops · Helped
Taking HCL drops was a relief for me in so many ways.
In context ↗ - elimination diet · Helped
as I gradually had to cut out more foods in my diet I noticed that going away
In context ↗ - H2 blockers · Worse
I've done it before and it lowered my already low stomach acid that it only caused more problems for my digestion.
In context ↗ - antihistamines · Not said
I read that taking antihistamines for too long actually doesn't help in the long run for either your liver or for food allergies.
In context ↗ - DAO · Worse
I've tried it twice now (very minute amounts) and I definitely react quite strongly to it.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | Illness onset; food intolerances grew over time until they were diagnosed with mycotoxin illnessOver time I gained more and more food intolerancesIn context ↗ | |
| 2016-08-25 | A few months into mould treatment, small improvements in various symptoms but not in energyAs of now, I'm noticing some small improvements with various symptoms although not with my energy yet.In context ↗ | Mold avoidance / CIRS protocol |
| 2018-10-29 | Cured their GERD with HCL drops after quitting Tums and PPIsI cured my GERD by quitting the Tums and PPI's when I learned that acid reflux can be caused by low stomach acid.In context ↗ | |
| 2019-08-30 | Brain fog went away as they cut more foods out of their dietI used to get brain fog early on in my illness but as I gradually had to cut out more foods in my diet I noticed that going away.In context ↗ | Elimination diets (other) |
| 2019-09-22 | Still eating only about three foods and reacting strongly to a DAO supplementI've tried it twice now (very minute amounts) and I definitely react quite strongly to it.In context ↗ |
Adverse events
- “When I was first starting out with the HCL and figuring out my routine I had the worst attack of acid reflux of my life.” In context ↗ Made symptoms worse
- “Many years ago I started with Betaine HCL tablets and capsules but found that I'm sensitive to Betaine” In context ↗ Side effects
- H2 blockers (unspecified)“I also wouldn't take an H2 blocker if my life depended on it. I've done it before and it lowered my already low stomach acid that it only caused more problems for my digestion.” In context ↗ Gut side effects
- DAO enzymes“Which is why I'm thinking of trying DAO now. ... I've tried it twice now (very minute amounts) and I definitely react quite strongly to it.” Side effects
Symptoms mentioned
Their words about their symptoms
- Mast cell (MCAS) & allergies
Over time I gained more and more food intolerances
In context ↗ - Brain fog
I used to get brain fog early on in my illness but as I gradually had to cut out more foods in my diet I noticed that going away.
In context ↗ - Gut problems
I cured my GERD by quitting the Tums and PPI's when I learned that acid reflux can be caused by low stomach acid.
In context ↗