Long COVID
Moderate → much betterIll 3.5 years before improving or writing
Nonfunctional with long COVID, now much better after a prescribed lung treatment
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- Jan 2024
In their words
- Condition: Long COVID
i was originally diagnosed with long covid in early 2020 when no one knew much about it
In context ↗ - At worst: Moderate
I’ve been doing nothing but doing zooms and watching tv for 3.5 months but my symptoms only feel like they’re getting worse as it goes on
In context ↗ - Now: Much better
i can say a little over 3 years out that i am doing so much better than where i started, and even where i was a year ago
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Dune 82844 fell ill in 2020 with breathlessness, cold blue-tinged toes, low fevers and crashes after exertion. A doctor-prescribed treatment for their lungs took them from nonfunctional to 60-70%, though it was no cure, and exercise repeatedly set them back. Over three years, after many specialists, they improved to miles better, though cold feet, fatigue and small-fibre neuropathy remained.
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What they tried
Also tried
the same prescription as the OP's (unnamed)· Helped a lothot pack· Helpedexercise· Worseresting· Not saidkt tape· Not saidcompressive socks· Not said
Their words about each treatment
- the same prescription as the OP's (unnamed) · Helped a lot
its not a cure no doubt but its made me go from nonfunctional to 60-70%
In context ↗ - resting · Not said
But doing stuff like exercising has definitely caused my symptoms to decline rapidly for a short bit so I’m not going to stop resting.
In context ↗ - exercise · Worse
I went for some exercise a few days ago (extremely bad idea, do not recommend) and my symptom immediately got way worse
In context ↗ - hot pack · Helped
i always used to fix it by throwing a drug store hot pack in the microwave and slapping it on my feet
In context ↗ - kt tape · Not said
mine are literally like children so kt tape ... are your best friends
In context ↗ - compressive socks · Not said
compressive socks, whatever makes you feel better are your best friends
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2020-10-06 | doctor-prescribed inhaler took them from nonfunctional to 60-70%its made me go from nonfunctional to 60-70%In context ↗ |
| 2020-10-10 | crashed after exercise, with a low fever and blue toesI went for some exercise a few days ago (extremely bad idea, do not recommend) and my symptom immediately got way worseIn context ↗ |
| 2023-09-20 | much better than at the start and than a year earlier, after seeing many specialistsa little over 3 years out that i am doing so much better than where i started, and even where i was a year agoIn context ↗ |
| 2024-01-31 | miles better than three years before; feet still cold a lotalthough i’m miles better than i was 3 years ago my feet are still cold a Lot lmaoIn context ↗ |
Symptoms mentioned
Flu-like symptomsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- POTS & dysautonomia
my weird feet temperature problems were caused by some combination of autonomic dysfunction and the neuropathy
In context ↗ - Temperature regulation
my feet are still cold a Lot
In context ↗ - Flu-like symptoms
just random fevers that go away quickly and the usual symptoms
In context ↗ - Neuropathy & tingling
small fiber neuropathy
In context ↗ - Post-exertional malaise
doing stuff like exercising has definitely caused my symptoms to decline rapidly for a short bit
In context ↗