ME/CFS
Moderate → no benefit
Weak, dizzy and drained with ME/CFS, still struggling despite rest and diet changes
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Dec 2021
In their words
- Condition: ME/CFS
being diagnosed last year with CFS, was as much as a blessing for me as the ADHD/CAPD label
In context ↗ - At worst: Moderate
I am learning to be relieved and proud of myself if I only read a book, or just get the litter box clean.
In context ↗ - Now: No benefit
My Wife and I have had poor health since we recieved our vaccinations.
In context ↗ - Began after: nothing they could name
I always felt under the weather, weak, dizzy and drained
In context ↗
Summary
Acorn 69056, a woman in her forties, was diagnosed with CFS in 2020 after years of feeling weak, dizzy and drained and being called lazy and a hypochondriac. She said the diagnosis brought relief and that she was resting, meditating and cutting out white sugar and flour. She still struggled to function, and said she and her wife had been in poor health since their vaccinations.
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What they tried
Also tried
meditation· Helpedpsychiatrist-prescribed meds (11 to 23 meds)· Much worsenapping, lying down to rest, bed by 10· Not saidrewiring my brain· Not saidcutting out white sugar and flour· Not said
Their words about each treatment
- psychiatrist-prescribed meds (11 to 23 meds) · Much worse
I ended up hospitalized over 8 times because the fool had me on 11 to 23 meds
In context ↗ - napping, lying down to rest, bed by 10 · Not said
I even nap now, (or just lay down and rest) and I try to get to bed by 10 every night.
In context ↗ - rewiring my brain · Not said
I now have fun rewiring my brain every morning I get up.
In context ↗ - meditation · Helped
I meditate a lot, especially because observing myself I can better tell where my body and brain are at.
In context ↗ - cutting out white sugar and flour · Not said
Like cutting out white sugar and flour for a start
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long-standing weakness, dizziness and comprehension problems; labelled lazy and a hypochondriacI always felt under the weather, weak, dizzy and drainedIn context ↗ | Mild | |
| 2021-01-11 | relieved by CFS diagnosis, learning to rest at set times and meditateI now have fun rewiring my brain every morning I get up. ... I meditate a lotIn context ↗ | Moderate | Meditation, yoga, breathwork |
| 2021-12-28 | poor health since vaccination; sleepless night reading Ortleb's articlesMy Wife and I have had poor health since we recieved our vaccinations.In context ↗ | Moderate |
Adverse events
- “In my twenties alone, because I was told to listen to my psychiatrist, and take my meds, I ended up hospitalized over 8 times because the fool had me on 11 to 23 meds.” In context ↗ Hospitalisation
Symptoms mentioned
Their words about their symptoms
- Brain fog
my comprehension issues are bad, and I struggle to function, cope and keep up with all life situations
In context ↗ - POTS & dysautonomia
recently diagnosed as ADHD, with comprehension and vertigo issues
In context ↗ - Sleep problems
I'm having a sleepless night
In context ↗ - Anxiety & low mood
I have only been depressed 3 times in my life
In context ↗