Moderate ME/CFS now mild, much better after reading Heal Your Nervous System
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2025
In their words
- Condition: ME/CFS
I just joined this cfs subreddit
In context ↗ - At worst: Moderate
At my worst I'd say I was moderate, now I'd say I'm mild, but my capacity is still low. I can't work yet.
In context ↗ - Now: Much better
At my worst I'd say I was moderate, now I'd say I'm mild, but my capacity is still low. I can't work yet. But I'm improving :)
In context ↗
Summary
Posting in r/cfs in March 2025, they said that at their worst they were moderate and now were mild, though their capacity was still low and they could not work yet. Their main symptoms were PEM, fatigue, brain fog and heart palpitations. They pointed to nervous-system dysregulation and, after reading Heal Your Nervous System, said they were already doing much better and saw it as their blueprint to a full recovery.
Ask Miruvor AI
What they tried
What they credit
Their words about each treatment
- making the last 30sec to a minute a bit cooler · Helped
Turning the water cold or cool to a temperature that feels good or feels invigorating seems to make me feel less bad after
In context ↗ - Heal Your Nervous System (nervous system regulation) · Helped
I think it’s my blueprint to a full recovery, I’m already doing so much better :)
In context ↗
Approaches: Brain retraining
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | at worst, moderate ME/CFSAt my worst I'd say I was moderateIn context ↗ | Moderate |
| 2025-03-17 | now mild and still improving but unable to worknow I'd say I'm mild, but my capacity is still low. I can't work yet. But I'm improving :)In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
heart palpitations
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID fatigue and tachycardia; kambo and ivermectin helped early, then relapse
Birch 29532 caught COVID in early 2021 and developed long COVID with tachycardia; after a third infection during pregnancy she became debilitated by fatigue four months after her baby was born in January 2025. Mould avoidance and low-dose naltrexone didn't…
-
Long COVID too faint to walk or drive, now good most days at about 80-85%
A woman who fell ill with long COVID in August 2023 was too faint to walk around much or drive, with brain fog, breathlessness and anxiety. Quitting her job and resting six months, plus supplements, brought her to about 90% by mid-2024, but a January 2025…
-
Bedridden with ME/CFS at 5% capacity, now much better after nervous system rehab
Fell ill in late 2023 at age 17 with severe insomnia and anxiety, then mononucleosis in April 2024 and a total collapse in September 2024 after social harassment and a breakup. Bedridden at about 5% capacity with brain fog, POTS, PEM and MCAS-like reactions,…
-
Bedbound most of the day with ME/CFS, now somewhat better after self-led trauma work
Owl 71555 has had ME/CFS since childhood and was bedbound 80-90% of the day with constant severe brain fog before two years of self-led trauma work. That work improved gut function, cognition, muscle pain and migraines; they now spend about eight hours a day…