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Long COVID Mild → near normalIll 13 months before improving or writing

Long COVID swaying, nearly back to normal after walking and yoga breathing

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
13 months
Last post
Feb 2023
In their words
  • Condition: Long COVIDIt’s been 6 months, definitely better than it was but boat feeling still comes and goes In context ↗
  • At worst: MildI did a lot of walking everyday and dropped 7 kilos and that helped too. In context ↗
  • Now: Near normalMine has for the most part gone. In context ↗
  • Began after: COVIDcovidlonghaulers
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

A long COVID patient six months in described a boat-like swaying when walking, near-fainting, visible blue veins and stopping breathing in their sleep, with the boat feeling making it hard to go anywhere. Daily walking with weight loss, yoga breathing before sleep and lemon water came alongside steady improvement; by July 2022 they could do long walks and exercise, with the boat feeling a few times a day, and by February 2023 it had mostly gone.

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What they tried

Also tried

yoga breathing· Helpedlemon water· Helpedmeds for ear inflammation· Helpedsupplements· Worsecold showers· Worse
Their words about each treatment
  • yoga breathing · HelpedDoing yoga breathing before sleep did seem to help In context ↗
  • supplements · Worsecertain supplements I was taking also exacerbated it so I would be awake for hours at night scared to go back to sleep In context ↗
  • walking everyday · HelpedI did a lot of walking everyday and dropped 7 kilos and that helped too In context ↗
  • cold showers · WorseI find that sometimes my symptoms are triggered with cold showers too! In context ↗
  • lemon water · HelpedI started drinking lemon water twice a day which seems to help, not sure if its the lemon or the vit C in it that helps In context ↗
  • meds for ear inflammation · Helpedthere was only minor inflammation in one ear and I took meds and it went away but sensation is still there In context ↗

Approaches: Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
~January 2022long COVID with boat sensation, near-fainting and stopping breathing in sleepIt used to be worse, I feltm like the blood wasn’t making it to my brain for a split second and I was going to pass out. In context ↗Mild
2022-07-19better than earlier, boat feeling still comes and goesIt’s been 6 months, definitely better than it was but boat feeling still comes and goes and makes it hard to go anywhere. In context ↗MildEveryday exercise and activity
2022-07-23able to do long walks and exercise, boat feeling a few times a dayDoing better than a few months ago thank goodness, able to do some long walks and exercise now but still get the boat feeling a few times a day. In context ↗MildEveryday exercise and activity
2023-02-13boat sensation mostly goneMine has for the most part gone. In context ↗Near normal

Adverse events

  • “certain supplements I was taking also exacerbated it so I would be awake for hours at night scared to go back to sleep” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • POTS & dysautonomiasometimes it feels like the floor is rising and falling beneath me when I walk?? In context ↗
  • Sleep problemsI would stop breathing in my sleep and thought it was sleep apnea. In context ↗

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