ME/CFS with chronic pain and PTSD for a decade, now somewhat better after a steroid shot and Wegovy
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 10 years
- Last post
- Jun 2026
In their words
- Condition: ME/CFS
I developed CFS/ME and chronic pain from earlier mono
In context ↗ - At worst: Moderate
care from my reclining position to yours
In context ↗ - Now: Somewhat better
I have been feeling better (it's been 4 days) but I had a steroid shot the same day for my aggravated chronic pain
In context ↗ - Began after: injury or surgery
Ok I had a total hysterectomy and went without hormones for the first year. Honestly I think all that played a part in triggering my cfs.
Read from 14 of their posts and comments; links to the 8 this page draws on
Summary
Meadow 64448, a woman in her mid-forties, has had ME/CFS for around a decade, which she thinks was triggered by a total hysterectomy and a year without hormones. She has chronic pain and PTSD; gabapentin gave her a little drive, but nicotine patches made her very ill. In June 2026 a month's free sample of Wegovy plus a steroid shot left her feeling somewhat better and better rested; she later thought the steroid shot was mostly responsible.
Ask Miruvor AI
What they tried
What they credit
Also tried
Their words about each treatment
- herbs · Not said
supplements, herbs, PT, acupuncture, hypnosis, therapies, medications, tens machine
In context ↗ - therapy · Worse
I've had therapy (& hypnosis for pain) make my mental health worse because "normal" talk therapy generally doesn't work for PTSD
In context ↗ - hypnosis · Worse
I've had therapy (& hypnosis for pain) make my mental health worse
In context ↗ - sugar free gummy bears · Worse
Sugar free gummy bears. Learned the hard way, it was awful because I ate a lot of them
In context ↗ - Gabapentin · Helped
I get Gabapentin and it can give me a little bit of drive, but only if I overtake it.
In context ↗ - patches · Worse
I've used patches to try to quit smoking and got very ill initially
In context ↗ - cooling aids (frozen necklaces, cold bedroom, cooling mattress topper) · Helped
I also liked frozen necklaces ... is having my bedroom as cold as possible.
In context ↗ - wegovy · Helped
I just started a free sample of one month of wegovy ... I have been feeling better (it's been 4 days)
In context ↗ - z packs and a steroid shot · Helped a lot
z packs are my most effective treatment ... I think it was the steroid shot that same day mostly lol
In context ↗
Approaches: Other drugs and medicines
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| ~2016 | ME/CFS began after a total hysterectomy and a year without hormonesHonestly I think all that played a part in triggering my cfs.In context ↗ | Not stated | |
| — | very ill after starting nicotine patches to quit smokingI've used patches to try to quit smoking and got very ill initially even though my body was already dependent on nicotine.In context ↗ | Not stated | Nicotine patches |
| 2026-06-08 | started a free one-month Wegovy sample and had a steroid shot the same day; felt better within 4 daysHey OP I just started a free sample of one month of wegovy. ... I have been feeling better (it's been 4 days)In context ↗ | Not stated | Semaglutide (Ozempic, Wegovy) |
| 2026-06-26 | thinks the steroid shot helped most; sleeping more, muscles more relaxed, better rest, PTSD breakthroughI think it was the steroid shot that same day mostly lol ... overall Ive had better rest.In context ↗ | Moderate | Corticosteroid pulses |
Adverse events
- CBT and psychotherapy“I've had therapy (& hypnosis for pain) make my mental health worse” In context ↗ Mood or psychiatric effects
- Nicotine patches“I've used patches to try to quit smoking and got very ill initially even though my body was already dependent on nicotine.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I had a steroid shot the same day for my aggravated chronic pain
In context ↗ - Temperature regulation
Sometimes I would be waking up soaking wet three times a night.
In context ↗ - Sleep problems
I've been sleeping a lot more and I made a huge breakthrough with my PTSD stuff.
In context ↗ - Gut problems
Sugar free gummy bears. Learned the hard way, it was awful because I ate a lot of them
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID, once bedbound, now about 70% of pre-COVID self after salt and compression
A woman in North Carolina developed long COVID after COVID in February 2023, with POTS, small fiber neuropathy, MCAS and hEDS. By August 2023 she could barely stand and was later bedbound; she reached about 70% of her pre-COVID self, crediting salt, fluids…
-
Debilitated by long COVID with PEM and brain fog, now much better; clonidine helped
A man in his fifties with ME/CFS after COVID in July 2022 had four rough months before a booster brought full recovery, then cycles of relapse and partial recovery. A September 2023 sickness left him debilitated and forced early retirement. PEM, fatigue and…
-
Couch-bound with POTS and ME/CFS, somewhat better after beta blockers and ivabradine
A US nurse developed POTS after her second Pfizer dose in 2021, and spent that summer couch-bound, hallucinating and losing muscle. Beta blockers and then Ivabradine with fluids brought her to about 90% within a year, but CFS with PEM set in. Fatigue, nerve…
-
Nearly bedbound with long COVID, now close to normal after ganglion blocks and nicotine
A former daily 5K runner, he caught COVID and was nearly bedbound in the second month with dysautonomia and PEM. Over more than two years he tried many treatments, crediting stellate ganglion blocks and nicotine, and was trying rapamycin. He was not fully…