ME/CFS
Mild → much betterIll 2 years before improving or writing
Acute-onset ME/CFS with weakness and pain, now remarkably better
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- Jul 2023
In their words
- Condition: ME/CFS
Since coming down with CFS at age 37 (primary symptoms: muscle weakness and pain, hypersensitivity to sensations/pain, sudden onset)
In context ↗ - At worst: Mild
I was always on the more minor side of symptoms; I'm not in the bedbound or nearly bedbound club
In context ↗ - Now: Much better
I still have the same symptoms (weakness, low energy, pain, some loss of muscular control, etc.) but they are significantly better than they were at worst point.
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Gull 36521 fell ill with acute-onset CFS/ME at age 37 in early 2015, with muscle weakness, pain and hypersensitivity. They were never bedbound and kept working, though a few months before their improvement they felt very bad for months. About two years after onset their symptoms improved significantly, seemingly randomly; by 2023 they called them remarkably better. In 2018 they still had weakness, low energy and pain.
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What they tried
Also tried
pulling up your feet so your toes would point towards your head· Helpedkratom· Helped
Their words about each treatment
- pulling up your feet so your toes would point towards your head · Helped
I only learned pretty late in life how to combat them by pulling up your feet so your toes would point towards your head.
In context ↗ - kratom · Helped
A local fellow CFS sufferer recommended it to me recently and I did enjoy it. It has a small stimulant effect. Have only taken it a few times.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| early 2015 | acute onset of CFS/ME at age 37, with muscle weakness, pain and hypersensitivitycoming down with acute-onset symptoms in early 2015In context ↗ | Mild |
| a few months before the improvement | worst period: months of very bad physical and mental malaiseI went through my worst period a few months before significantly improving ... I felt very, very bad, with physical/mental malaise for monthsIn context ↗ | Mild |
| early 2017 | significant improvement that came on suddenly, with the same symptoms but much bettera significant improvement almost exactly two years after coming down with acute-onset symptoms in early 2015In context ↗ | Mild |
| 2023 | symptoms remarkably better; still symptomatic and holding down a jobaround the two year mark my symptoms got remarkably betterIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I still have the same symptoms (weakness, low energy, pain, some loss of muscular control, etc.)
In context ↗ - Pain & fibromyalgia
primary symptoms: muscle weakness and pain
In context ↗ - Light & noise sensitivity
hypersensitivity to sensations/pain
In context ↗