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Long COVID Relapsed

Constant headache with long COVID, improved then relapsed; hot showers helped

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Dec 2023
In their words
  • Condition: Long COVIDDid anyone else get a headache after covid 24/7 for an entire year? In context ↗
  • Now: RelapsedFor years it went away for a couple of months but came right back. To a lesser extent but the pain is there, daily. In context ↗
  • Began after: COVIDDid anyone else get a headache after covid 24/7 for an entire year? In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on

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Summary

After COVID, Island 26599 had a constant headache for a year, nerve pain on one side of their head and severe low mood. The headache subsided after about a year and they felt fine for roughly nine months, until another illness brought the pain back within three weeks. By December 2023 the pain was daily but milder. They started counseling for anxiety and found hot showers helped; topiramate gave them flashing lights and a panic attack.

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What they tried

Their words about each treatment
  • counseling for my mental health · Helpedi started counseling for my mental health ... I tried so hard to work on calming my anxiety and when i did the headache also slowly went away, but it could be just a coincidence In context ↗
  • hot showers · HelpedI havent tried that but hot showers help. In context ↗
  • topiramate · Worsethis doc gave me topiramate or whatever and it felt like lights were flashing. I woke up and had a panic attack. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
onsetconstant one-sided headache every day after COVIDDid anyone else get a headache after covid 24/7 for an entire year? In context ↗Not stated
—deep low mood during the year of daily headachei went into a deep dark place the first time In context ↗Not stated
after 1 yearheadache subsided and she felt fine for monthsIt took me 1 entire year before my headaches subsided In context ↗Near normal
2023headache and nerve pain returned after another illnessafter 3 weeks post weird sickness i started to get small nerve pains at the same side of my head where i used to get them, its getting worse by the day In context ↗Not stated
2023-12-25daily pain, milder than beforeTo a lesser extent but the pain is there, daily. In context ↗Not stated

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Headaches & migraineHave daily head pains on left side only. In context ↗
  • Neuropathy & tinglingi started to get small nerve pains at the same side of my head In context ↗
  • Anxiety & low moodi went into a deep dark place the first time In context ↗
  • Vision problemsi see colors now In context ↗

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Asking aboutIsland 26599’s story

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