Long COVID
Near normalIll 1 year before improving or writing
Long COVID with extreme fatigue and tremors, now almost back to normal
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Jan 2025
In their words
- Condition: Long COVID
I had extreme fatigue. All other symptoms were neurological: cerebellar ataxia, nystagmus, intention tremors, muscle weakness, etc.
In context ↗ - Now: Near normal
I would say I’m as recovered as I’m going to get, which is 90%? ... I make it through my regular daily activities ok now.
In context ↗ - Began after: COVID
Not sure I’ll ever have the athletic endurance I did prior to Covid
- Says they never had: Breathlessness
I never had any respiratory or cardiac symptoms at all.
- Says they never had: Heart symptoms & palpitations
I never had any respiratory or cardiac symptoms at all.
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
They developed long COVID with extreme fatigue, cerebellar ataxia, nystagmus, intention tremors and muscle weakness, but no respiratory or cardiac symptoms. Recovery was slow and gradual; symptoms were vastly improved by nine months and hand coordination and tremors better around the tenth to eleventh. Just over a year in they rated themselves about 90% recovered, still having restless leg syndrome and mild tremors, but managing daily activities.
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What they tried
Also tried
drops· No changelimiting eye strain· No change
Their words about each treatment
- drops · No change
I tried drops ... Nothing seemed to help much.
In context ↗ - limiting eye strain · No change
tried limiting eye strain ... Nothing seemed to help much.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2023 | COVID-19 with extreme fatigue and neurological symptomsI had extreme fatigue. All other symptoms were neurological: cerebellar ataxia, nystagmus, intention tremors, muscle weakness, etc.In context ↗ | Moderate |
| 2024 | hand coordination, dexterity and tremors largely improvedit was so slow and gradual I thought it would be permanent. But around the 10/11 month mark it really improvedIn context ↗ | Mild |
| 2025-01-31 | about 90% recovered, with restless leg syndrome and mild tremors remainingI would say I’m as recovered as I’m going to get, which is 90%?In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Vision problems
I had this for a while as well as an eyebrow that would droop and sometimes feel … fuzzy/itchy?
In context ↗ - Neuropathy & tingling
lingering nerve issues (intention tremors, numbness, pin and needles, muscle spasms, etc.)
In context ↗ - Muscle weakness
cerebellar ataxia, nystagmus, intention tremors, muscle weakness, etc.
In context ↗