ME/CFS
Severe → no benefitIll for 8 years
Eight years of severe ME/CFS, unable to work or stand, with nothing helping
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 8 years
- Last post
- Oct 2025
In their words
- Condition: ME/CFS
On the more severe end of CFS.
In context ↗ - At worst: Severe
spending all your days alone laying down with the exception of doctors appointments
In context ↗ - Now: No benefit
Nothing helps I go to therapy.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A r/cfs user described eight years of severe illness, spending days lying down and sometimes crawling on the floor because they could not stand. They could not work and depended on family who they said did not understand their limits. A doctor's appointment in October 2025 caused a crash that left them unable to do anything for days. They said nothing helped.
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What they tried
Also tried
Their words about each treatment
- therapy · No change
Nothing helps I go to therapy. It’s exhausting.
In context ↗
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I had a doctors appointment today, which sent me into a huge crash which means I genuinely can’t do anything for the next few days
In context ↗ - Pain & fibromyalgia
I’m constantly in pain
In context ↗ - Anxiety & low mood
I’m constantly in a negative mindset
In context ↗ - Muscle weakness
I literally physically feel like I can’t stand up where I’m crawling around on the goddamn floor
In context ↗