Long COVID with crashes, somewhat better after hyperbaric oxygen and apheresis
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jul 2022
In their words
- Condition: Long COVID
I caught it b4 vaccines, got 2 jabs and it had no immediate effect ... This is just the list of things I've done to slowly rebuild.
- At worst: Mild
my limited gas tank
In context ↗ - Now: Somewhat better
Slowly getting there. Glacially slow. I still ebb & flow with crashes.
In context ↗ - Began after: COVID
I caught it b4 vaccines
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
A person who caught COVID before vaccines became available developed long COVID and spent a long time slowly rebuilding. They credited hyperbaric oxygen, apheresis and IV drips with leveling them up, and low-dose naltrexone with better word retrieval while trying lion's mane. They still had crashes and declined significantly months after vaccination, reported their doctor said HBOT gains would not stick until underlying deficiencies were treated, and described a prescribed drug that made them worse.
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What they tried
What they credit
Also tried
Their words about each treatment
- Antihistamine · Not said
Antihistamine & healthy diet
In context ↗ - stack of long covid supplements · Not said
a stack of long covid supplements that rotates evolves over time
In context ↗ - antivirals · Not said
including antivirals, binders, and specific probiotics
In context ↗ - vitamin drips · Helped
I definitely leveled up from both these therapies & some IV drips
In context ↗ - Infared saunas · Not said
Infared saunas, acupuncture, lymphatic massage
In context ↗ - acupuncture · Not said
acupuncture, lymphatic massage, MPS treatments
In context ↗ - lymphatic massage · Not said
lymphatic massage, MPS treatments
In context ↗ - MPS treatments · Not said
MPS treatments, vagus nerve stimulation activities & devices
In context ↗ - vagus nerve stimulation activities & devices · Not said
vagus nerve stimulation activities & devices, meditation, lots of rest
In context ↗ - belly breathing, singing, gargling, humming, music, meditation · Helped
Long slow belly breathing, singing, gargling, humming, music, mediation, and light therapy all seen to help.
In context ↗ - lots of rest · Not said
meditation, lots of rest , hyperbaric chamber
In context ↗ - HBOT · Helped
HBOT helped me.
In context ↗ - ozone · Not said
hyperbaric chamber, ozone, antithrombotics
In context ↗ - antithrombotics & /or anticoagulants & coated aspirin · Not said
antithrombotics & /or anticoagulants & coated aspirin, AVC & baking soda w/ water
In context ↗ - AVC & baking soda w/ water · Not said
AVC & baking soda w/ water, raw honey
In context ↗ - raw honey · Not said
raw honey, HELPApherisis
In context ↗ - a drug that made me worse · Worse
the prescription of a drug that made me worse
In context ↗ - 2 jabs · Not said
got 2 jabs and it had no immediate effect... Although I did significantly decline months later.
In context ↗ - LDN · Helped
LND seems to be helping my word recall, I'm a few weeks in the full dose after ramping up for a couple weeks.
In context ↗ - high quality Lion's Mane · Not said
I just yesterday started on a high quality Lion's Mane
In context ↗ - light therapy · Helped
mediation, and light therapy all seen to help
In context ↗
Approaches: Hyperbaric & oxygen · Alternative therapies · Apheresis · Mind-body practices · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | caught COVID before vaccines existed; long COVID followedI caught it b4 vaccinesIn context ↗ | Not stated | |
| 2022-03-09 | slow rebuild with a rotating stack of therapiesThis is just the list of things I've done to slowly rebuild.In context ↗ | Mild | |
| months after 2 jabs | significantly declined months after two vaccine jabsgot 2 jabs and it had no immediate effect... Although I did significantly decline months later.In context ↗ | Not stated | |
| 2022-06-29 | hyperbaric oxygen helpedHBOT helped me.In context ↗ | Mild | Hyperbaric oxygen (HBOT) |
| 2022-06-29 | LDN helped with word retrievalI started LDN recently, which I think is helping with word retrieval (at least on my good days).In context ↗ | Mild | Low-dose naltrexone |
| 2022-07-08 | slow gains but still crashingSlowly getting there. Glacially slow. I still ebb & flow with crashes.In context ↗ | Mild | |
| 2022-07-14 | leveled up from HBOT, apheresis and IV dripsI definitely leveled up from both these therapies & some IV drips (also more affordable than in the US).In context ↗ | Mild | HELP apheresis / plasmapheresis |
Adverse events
- “Other than being told to rest, and the prescription of a drug that made me worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
I started LDN recently, which I think is helping with word retrieval (at least on my good days).
In context ↗
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