ME/CFS
No benefit
ME/CFS with brain fog and fatigue; treatment brought no overall benefit and worse fatigue
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Dec 2022
In their words
- Condition: ME/CFS
like the CFS or things it causes me to to react to
In context ↗ - Now: No benefit
One week for me and my energy is still much worse than before, plus I have regular chest pains.
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
A Reddit user with CFS who reported trying something for months: brain fog improved noticeably, but fatigue became far worse and daily headaches appeared, so they stopped. In 2021 they said a week later their energy was still much worse than before, with regular chest pains. They said most medication side effects hit them harder than other people and made their CFS worse, so they could never stay on any long term.
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What they tried
Their words about each treatment
- Low Dose Naltrexone · Worse
My brain fog was WAY better on it ... However, it made my fatigue infinity worse, and I got other side effects such as daily headaches
In context ↗ - COVID vaccination as treatment · Worse
One week for me and my energy is still much worse than before
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | Living with CFS; onset not datedlike the CFS or things it causes me to to react toIn context ↗ | |
| 2018-12-28 | Took low-dose naltrexone for months: brain fog much better but fatigue far worse and daily headaches, so stoppedMy brain fog was WAY better on it ... it made my fatigue infinity worseIn context ↗ | Low-dose naltrexone |
| 2021-08-11 | Coronavirus vaccine: a week later energy still much worse than before, plus regular chest painsOne week for me and my energy is still much worse than before, plus I have regular chest painsIn context ↗ | |
| 2022-12-28 | Still ill; cannot stay on medicines long term because their side effects worsen the CFSI've never been able to stay on any long term because ultimately they made my CFS worseIn context ↗ |
Adverse events
- Low-dose naltrexone“It helped my other symptoms a lot but made the fatigue SO much worse I had to stop” In context ↗ Made symptoms worse
- Low-dose naltrexone“However, it made my fatigue infinity worse” In context ↗ Made symptoms worse
- Low-dose naltrexone“I got other side effects such as daily headaches” In context ↗ Side effects
- COVID vaccination as treatment“One week for me and my energy is still much worse than before” In context ↗ Made symptoms worse
- COVID vaccination as treatment“plus I have regular chest pains” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
My brain fog was WAY better on it
In context ↗ - Headaches & migraine
other side effects such as daily headaches
In context ↗ - Heart symptoms & palpitations
plus I have regular chest pains
In context ↗