ME/CFS
Mild → no benefit
ME/CFS with fibromyalgia, no clear improvement from supplements or exercise
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jul 2022
In their words
- Condition: ME/CFS
there isnt a lot that is done for cfs/me
In context ↗ - At worst: Mild
I normally jog for 30 - 60 mins each day depending on my energy levels.
In context ↗ - Now: No benefit
Since COVID I have not been able to exercise. Its been so bad for me.
In context ↗
Read from 8 of their posts and comments; links to the 5 this page draws on
Summary
Pelican 76719 has had ME/CFS alongside fibromyalgia and hypermobile joint disorder since at least early 2020. Omega-3 and B12 taken with pain medication, on a pain doctor's advice, helped only a little. Swimming caused no crash, but COVID pool closures stopped it, so exercise moved to jogging on a rebounder for 30-60 minutes a day; electric wheelchairs later allowed more activity.
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What they tried
Also tried
omega 3· Helpedb12· Helpedswimming/water aerobics· Helpedmotorized wheelchair· Helpedcaffeine· Much worsepain medication· Not saidrebounder (mini trampoline)· Not said
Their words about each treatment
- pain medication · Not said
along with my pain medication I take the omega 3 and the b12
In context ↗ - omega 3 · Helped
I take the omega 3 and the b12. It helps a little
In context ↗ - swimming/water aerobics · Helped
Honestly its the only activity that does not result in a crash for me.
In context ↗ - rebounder (mini trampoline) · Not said
I normally jog for 30 - 60 mins each day depending on my energy levels.
In context ↗ - motorized wheelchair · Helped
Both have absolutely been worth the cost for me. It has allowed me to do things I could no longer do.
In context ↗ - caffeine · Much worse
When I drink caffeine I vomit till the point of dehydration.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-02-12 | already had ME/CFS with fibromyalgia and hypermobile joint disorder; taking omega 3, B12 and pain medicationMy pain management doctor that provides pain management for my fibromyalgia and Hypermobile Joint Disorder suggested I take a high dosage omega 3 as well as b12 each day.In context ↗ | Not stated |
| 2020-08-05 | could not exercise at all once public pools closed for COVIDSince COVID I have not been able to exercise. Its been so bad for me.In context ↗ | Mild |
| 2021-04-29 | back to daily exercise, jogging on a rebounder and swimmingThe rebounder I have has a handle bar on it that I hang on to while I jog in place. I normally jog for 30 - 60 mins each day depending on my energy levels.In context ↗ | Mild |
| 2021-07-13 | electric wheelchairs let them do things they could no longer doIt has allowed me to do things I could no longer do.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
My pain management doctor that provides pain management for my fibromyalgia and Hypermobile Joint Disorder
In context ↗ - Post-exertional malaise
Honestly its the only activity that does not result in a crash for me.
In context ↗ - Gut problems
When I drink caffeine I vomit till the point of dehydration.
In context ↗