ME/CFS
Mild → much betterIll 8 years before improving or writing
CFS for 7-8 years with exhausting meal prep, much better after finishing high school
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 8 years
- Last post
- Jan 2022
In their words
- Condition: ME/CFS
I have CFS had it for 7-8 years only got diagnosed last year.
In context ↗ - At worst: Mild
I do have to study from all day to around 10-11pm to get my work done
In context ↗ - Now: Much better
For me not recovery but really amazing improvement in cfs mine was honestly finishing high school.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
The user had CFS for 7-8 years, diagnosed only the previous year, and was studying through high school while finding meal preparation exhausting. A hospital program helped a little with diagnosis and workload. After finishing high school they reported a really amazing improvement, with sleep, fatigue-related pain and overall fatigue better or more manageable, though not recovered. A second COVID vaccine dose caused sickness and sleep for a few days.
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What they tried
Also tried
a program at the royal children’s hospital· Helpedboth my vaccines· Not said
Their words about each treatment
- a program at the royal children’s hospital · Helped
It did help me a little with me being able to give an offical diagnosis and got to change my workload.
In context ↗ - both my vaccines · Not said
with my second one I did get sick and just had to sleep for a few days then was better
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| onset | CFS beganI have CFS had it for 7-8 years only got diagnosed last year.In context ↗ |
| 2021-09-13 | last year of high school; long study days and meal preparation too exhaustingI do have to study from all day to around 10-11pm to get my work done. ... I will not eat if I have to make my own meals because the preparation is too exhausting.In context ↗ |
| 2022-01-19 | finished high school; sleep, pain and fatigue improvednot recovery but really amazing improvement in cfs ... Sleep has been way better, pain to do with fatigue is much betterIn context ↗ |
Adverse events
- COVID vaccination as treatment“with my second one I did get sick and just had to sleep for a few days then was better” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Sleep has been way better
In context ↗ - Pain & fibromyalgia
pain to do with fatigue is much better
In context ↗ - Anxiety & low mood
anxiety makes fatigue worse
In context ↗