Long COVID body-wide vibrations, somewhat better with fasting and low-histamine protocol
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 20 months
- Last post
- Jun 2022
In their words
- Condition: Long COVID
I'm on, what I believe is 8 months.
In context ↗ - At worst: Mild
Mine were very intense when they first started,to the point I was unable to sleep.
In context ↗ - Now: Somewhat better
It’s been over a year now. It’s not nearly as bad as it was.
In context ↗
Read from 27 of their posts and comments; links to the 15 this page draws on
Summary
Comet 22352 developed long COVID around October 2020, with body-wide internal vibrations, head pressure, visual snow and broken sleep. Symptoms eased over months; they credited an intermittent fasting and low-histamine protocol plus the passage of time. They overdid it once at physical therapy and some symptoms reemerged. By June 2022, about 20 months in, the vibrations were less frequent and intense but not gone.
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What they tried
What they credit
Also tried
Their words about each treatment
- diet changes · Helped
caffeine and sugar are a big no, def exacerbates everything ... I feel like staying hydrated, eating healthy and the passage of time is what's really helping.
- ibuprofen · No change
I've taken ibuprofen, unfortunately didn't notice any difference.
In context ↗ - fish oil · Not said
I take fish oil and airborne immunity support, and drink a vitamin shake in the am. Not sure if any of those have actually helped, or its just time doing the healing.
In context ↗ - immunity vitamins · Not said
I've just changed my diet and added some fish oil, some immunity vitamins, and turmeric.
In context ↗ - heating pad around my head · Helped
I would usually lay down and wrap my heating pad around my head, gave me some comfort I guess.
In context ↗ - ice pack on my head · Helped
I put an ice pack on my head the other night when I had it, and it seemed to help
In context ↗ - staying hydrated · Helped
I feel like staying hydrated, eating healthy and the passage of time is what's really helping.
In context ↗ - tart cherry juice · Helped
I've been drinking that,I feel like it's been helping...could just be a placebo effect, or time just passing, who knows, but hey I'll take it!
In context ↗ - physical therapy · Worse
I just recently over did it a bit at physical therapy and had some symptoms reemerge
In context ↗ - low histamine diet · Not said
I'm following the autophagy protocol on fb...low histamine and intermittent fasting....just started so not sure if it's doing anythng yet.
In context ↗ - Tom Bunker intermittent fasting protocol · Helped
I‘ve been doing that “Tom Bunker” intermittent fasting protocol, on Facebook. I feel like it has helped, that and the passage of time.
In context ↗ - flonase · No change
I've tried flonase,saline sprays and rinses, plus allergy pills...nothing works so far.
In context ↗ - avoiding stress · Not said
I’ve made diet changes, and try to avoid stress as much as possible; not sure if that has helped, or if it’s just been passage of time.
In context ↗ - nighttime carpal tunnel wrist braces · Helped
I just started wearing 2 nighttime carpal tunnel wrist braces when I sleep. It’s been helping.
In context ↗ - passage of time · Helped
could definitely just be the passage of time healing things.
In context ↗
Approaches: POTS medication · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| ~October 2020 | long COVID onset with intense body-wide internal vibrations and buzzingMine were very intense when they first started,to the point I was unable to sleep.In context ↗ | Mild | |
| 2021-04-19 | vibrations and buzzing died down over time, flaring occasionallyI have noticed over time mine have died down, but will occasionally flareIn context ↗ | Mild | Time and spontaneous remission |
| 2021-07-17 | symptoms re-emerged after overdoing it at physical therapyI just recently over did it a bit at physical therapy and had some symptoms reemergeIn context ↗ | Mild | |
| 2021-11-16 | internal vibrations greatly lessenedmy internal vibrations have greatly lessenedIn context ↗ | Mild | Intermittent fasting |
| 2022-06-12 | tingling, buzzing and numbness still lessening in frequency and intensityit’s all been lessening in frequency and intensity as time goes onIn context ↗ | Mild |
Adverse events
- Physical therapy / physiotherapy“I just recently over did it a bit at physical therapy and had some symptoms reemerge” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
I have them body wide, even in my head.
In context ↗ - Headaches & migraine
I had the pressure in the front sinus area and/or the top of my head
In context ↗ - POTS & dysautonomia
I notice my POTS symptoms get better while I'm up moving around for a bit.
In context ↗ - Vision problems
I have visual snow, and my eyesight is a bit worse.
In context ↗ - Light & noise sensitivity
as well as the light sensitivity
In context ↗ - Sleep problems
I have such shitty sleep. I wake up so much and I am constantly dreaming.
In context ↗ - Anxiety & low mood
any little twinge or minor relapse is sending me into a panic
In context ↗ - Post-exertional malaise
I just recently over did it a bit at physical therapy and had some symptoms reemerge
In context ↗
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