Badly struggling with long COVID, nearly back to normal after pacing, low-dose naltrexone
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Oct 2025
In their words
- Condition: Long COVID
most of my long covid symptoms
In context ↗ - Now: Near normal
I have made significant improvements and am basically back to my pre-COVID life and abilities. I do have several new health factors that I live with though (food allergies and POTS)
In context ↗ - Began after: COVID
most of my long covid symptoms have diminished greatly
Read from 10 of their posts and comments; links to the 8 this page draws on
Summary
Prairie 94729 had long COVID and struggled badly for about eight months. A year of rest and pacing set a foundation, then low-dose naltrexone, titrated from 0.5 mg to 3.5 mg daily (up to 4.5 mg when flaring), took about two months to help. By late 2025 they were basically back to their pre-COVID life, working full time and exercising, though mild POTS and food allergies remain.
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What they tried
Their words about each treatment
- rest and pacing · Helped
I had been working on rest and pacing and generally taking care of myself for about a year so I think that set a solid foundation
In context ↗ - Low Dose Naltrexone · Helped a lot
It definitely took a couple months on LDN before I started to really see improvement.
In context ↗ - electrolytes, compression wear · Not said
I do all the other things they recommend for POTS like electrolytes, compression wear, rest when needed, etc etc
In context ↗ - Strattera · Helped
I started Strattera while getting over long COVID and honestly I think it only helped.
In context ↗
Approaches: Other drugs and medicines · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID; struggled badly for about eight monthsI was really struggling for about 8 months!In context ↗ | Not stated | |
| 12 mo | a year of rest and pacing before starting LDNI had been working on rest and pacing and generally taking care of myself for about a yearIn context ↗ | Not stated | Pacing and the energy envelope |
| — | gradual improvement over months on low-dose naltrexoneIt definitely took a couple months on LDN before I started to really see improvement.In context ↗ | Not stated | Low-dose naltrexone |
| 2025-04-14 | back to normal energy, gym and running, eyesight normal, but mild POTS and some PEM leftI’m now back to my normal energy levels and even going to the gym/ running etc.In context ↗ | Near normal | Low-dose naltrexone |
| 2025-10-14 | basically back to pre-COVID life; mild POTS and food allergies remainI have made significant improvements and am basically back to my pre-COVID life and abilitiesIn context ↗ | Near normal | Low-dose naltrexone |
Adverse events
- Low-dose naltrexone“But def start low and titrate up bc I had some initial side effects, and going slow helped!” In context ↗ Side effects
- Low-dose naltrexone“The side effects I experienced were ringing in my ears, some lightheadedness, and some weird but minor sensations of derealization.” In context ↗ Side effects
- Low-dose naltrexone“some lightheadedness” In context ↗ Low blood pressure or fainting
- Low-dose naltrexone“some weird but minor sensations of derealization” In context ↗ Mood or psychiatric effects
- Atomoxetine (Strattera)“I do think initial side effects were probably compounded by long COVID (I had a lot of nausea)” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I still deal with some post exertion malaise
In context ↗ - POTS & dysautonomia
I have mild POTS now
In context ↗ - Vision problems
Difficulty focusing, blurriness, and some visual snow
In context ↗ - Brain fog
it very much helped with my brain fog
In context ↗ - Mast cell (MCAS) & allergies
food allergies and POTS
In context ↗
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