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Long COVID Relapsed

Long COVID with POTS-like symptoms and cold sores, improved with exercise then relapsed

Condition
Long COVID
At worst
Not stated
Ill before improving or writing
Not stated
Last post
Jul 2023
In their words
  • Condition: Long COVIDMy LC symptoms were just starting In context ↗
  • Now: RelapsedI thought mine were mostly better but now theyre back to early stages! In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

Fox 76466 developed long COVID after a COVID infection in January 2022, with POTS-like symptoms, plus constant cold sores that started about 8-9 months later. Too ill to exercise at first, they pushed through anyway and felt better for it. Around December 2022 their symptoms flared back to early stages; by July 2023 the cold sores were finally dying down, though random paresthesia remained.

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What they tried

Their words about each treatment
  • exercise · HelpedMy symptoms were too bad for exercise at first, then I tried again, they were still not the best but I pushed through and am better for it. In context ↗
  • Probiotics · No changeProbiotics don't make a dent. In context ↗
  • Valtrex · HelpedBeen on Valtrex and it stops them from completely forming but then I just have constant prodromal symptoms/constant beginning sores. In context ↗

Approaches: Exercise and activity

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
January 2022COVID infection; long COVID symptoms begin (heart rate up 50 bpm standing, breathlessness, chest pressure, digestive issues)My symptoms were too bad for exercise at first In context ↗Mild
2022-07-11tried exercise again and pushed through, felt better for itI tried again, they were still not the best but I pushed through and am better for it In context ↗MildEveryday exercise and activity
2022-12-05symptoms back to early stages when the weather turned coldI thought mine were mostly better but now theyre back to early stages! In context ↗Mild
2023-07-08constant cold sores finally dying down, random paresthesia remainsThey are finally dying down! But i have some weird residual symptoms— random paresthesia over my body In context ↗Mild

Symptoms mentioned

Their words about their symptoms

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