ME/CFS in high school with pain and microsleeps; ADHD meds and SSRIs did not help
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2018
In their words
- Condition: ME/CFS
does anybody know of any good understanding doctors in NYC that would be able to help me manage my CFS symptoms?
In context ↗ - At worst: Mild
literally slept from 3PM to 7AM every day and my parents would have to fight me to wake me up and get me to force myself to go to school, which was always accompanied by a lot of pain
In context ↗ - Now: No benefit
Now amphetamines are no longer helping (still feel tired, they actually make me feel more physically unwell and anxious and I am failing my first semester in university, and the resulting depression is getting worse by day
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They became ill with CFS in high school, when they slept from 3PM to 7AM, had pain and microsleeps, and had to force themselves through school. Amphetamines prescribed for ADHD later stopped helping and made them feel more unwell and anxious. SSRIs and bupropion did not help, and SSRIs worsened their CFS; by their first university semester they were tired, depressed, anxious, failing, and their depression was getting worse.
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What they tried
Also tried
Their words about each treatment
- amphetamines · Helped
until I was prescribed amphetamines for ADHD. Now amphetamines are no longer helping (still feel tired, they actually make me feel more physically unwell and anxious
In context ↗ - SSRIs · Worse
SSRIs actually made my CFS worse which was the cause of my depresson
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| high school | CFS onset in high school with long sleep, pain and microsleepswas in high school then, literally slept from 3PM to 7AM every dayIn context ↗ | Mild | |
| high school | Amphetamines for ADHD stopped uncontrollable sleepiness in classfalling asleep uncontrollably in classes (microsleep) until I was prescribed amphetamines for ADHDIn context ↗ | Not stated | Stimulants (unspecified) |
| — | SSRIs worsened CFSSSRIs actually made my CFS worseIn context ↗ | Not stated | Antidepressants (unspecified) |
| 2018-10-24 | Amphetamines no longer helping; depression and anxiety worsening at universityNow amphetamines are no longer helpingIn context ↗ | Mild |
Adverse events
- Stimulants (unspecified)“they actually make me feel more physically unwell and anxious” In context ↗ Made symptoms worse
- Antidepressants (unspecified)“SSRIs actually made my CFS worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Sleep problems
literally slept from 3PM to 7AM every day
In context ↗ - Pain & fibromyalgia
always accompanied by a lot of pain
In context ↗ - Anxiety & low mood
the resulting depression is getting worse by day, accompanied by periods of bad anxiety
In context ↗