ME/CFS with neuropathy and fatigue, almost back to normal after learning to talk to body
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Jul 2024
In their words
- Now: Near normal
Once i learnt to talk to my body all my symptoms have nearly gone. If i get a bit stressed they come back but way less.
In context ↗
Summary
A person with gut dysbiosis described flaring neuropathy and fatigue around the time they stopped low-dose naltrexone, which they had used for over a year; they were unsure whether LDN caused the flare and planned to restart. By mid-2024 they reported that learning to talk to their body had nearly cleared their symptoms, which returned only mildly under stress.
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What they tried
What they credit
Also tried
Their words about each treatment
- bacillus subtilis · No change
I have tried bacillus subtilis and it has still not gone away.
In context ↗ - LDN · No change
The first time i took Ldn i had all these crazy symptoms and now i started it again and nothing.
In context ↗ - talking to my body · Helped a lot
Once i learnt to talk to my body all my symptoms have nearly gone. If i get a bit stressed they come back but way less.
In context ↗
Approaches: Brain retraining
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | illness onset, date not statedI have the same problem.In context ↗ | Not stated |
| 2024-02-10 | neuropathy and fatigue flared up after switching LDN to night time and stopping itI actually still feel really bad so not sure it was the ldn so now im gonna start again and see if it the neuropathy and fatigue that's flared up goes down again.In context ↗ | Not stated |
| 2024-07-31 | learnt to talk to their body; all symptoms nearly goneOnce i learnt to talk to my body all my symptoms have nearly gone. If i get a bit stressed they come back but way less.In context ↗ | Near normal |
Adverse events
- Low-dose naltrexone“I had really bad side effects when starting ldn and every time I went up a dose.” In context ↗ Side effects
- Low-dose naltrexone“I tried to switch it to night time and I felt so bad on it” In context ↗ Side effects
- Low-dose naltrexone“The first time i took Ldn i had all these crazy symptoms” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
the neuropathy and fatigue that's flared up
In context ↗ - Gut problems
I have dysbiosis and ldn
In context ↗ - Anxiety & low mood
I found out I have a oversensitized nervous system probably caused by health anxiety.
In context ↗
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