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Long COVID Mild → no benefitIll for 2.5 years

Long COVID flare-ups and falling exercise tolerance, no benefit from a supplement

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill for
2.5 years
Last post
Jan 2024
In their words
  • Condition: Long COVIDthrough my first year of LC In context ↗
  • At worst: MildHeavy weight training, hard boxing and long runs held up for a year. Now 2yrs in I get a flare up after a coffee or walk In context ↗
  • Now: No benefitthe flare ups are more regular now ... exercise tolerance dropped through the floor
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

A Reddit user with long COVID could train intensely at the gym and boxing through the first year, with some symptoms. By 2 years 4 months, flare-ups were more regular, with 8-12 PVC/PACs a minute and falling exercise tolerance. They said quitting nicotine last February dropped exercise tolerance through the floor and caused bad ectopic beats after exertion. A trial of a supplement led to rashes, mouth burning, bigeminy and an emergency department visit.

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What they tried

Their words about each treatment
  • nicotine pouches · HelpedI was using nicotine pouches through my first year of LC and although I had some symptoms - I could train pretty intensely at the gym and boxing. ... When I quit nicotine last February my exercise tolerance dropped through the floor In context ↗
  • nattokinase · Much worse2 days into week 5 I was in accident and emergency as my heart rate had gone into bigeminy. ... I also have intense flu like symptoms. In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
first year of LC (2021-2022)Long COVID; could train intensely at gym and boxing with some symptomsI could train pretty intensely at the gym and boxing In context ↗Mild
February 2023quit nicotine; exercise tolerance dropped and ectopic beats after exertionWhen I quit nicotine last February my exercise tolerance dropped through the floor and I’d get really bad ectopic beats post exertion. In context ↗Mild
2023-12-02flare-ups more regular; PVC/PACs and falling exercise tolerancethe flare ups are more regular now, I’m getting 8-12 pvc/pac’s a minute and exercise tolerance is plummeting In context ↗Mild
2023-12-08bigeminy and flu-like symptoms after nattokinase, accident and emergency2 days into week 5 I was in accident and emergency as my heart rate had gone into bigeminy. In context ↗ModerateNattokinase
2024-01-06exercise tolerance very low; bad ectopic beats after exertionmy exercise tolerance dropped through the floor and I’d get really bad ectopic beats post exertion In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI get a flare up after a coffee or walk In context ↗
  • Heart symptoms & palpitationsI’m getting 8-12 pvc/pac’s a minute In context ↗
  • Flu-like symptomsI also have intense flu like symptoms In context ↗
  • Neuropathy & tinglingburning sensations around my mouth In context ↗
  • Headaches & migrainea few more headaches In context ↗

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Asking aboutPelican 37893’s story

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