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ME/CFS Severe → much better

Severe ME/CFS with pain and light sensitivity, now moderate to mild

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill before improving or writing
Not stated
Last post
Dec 2025
In their words
  • Condition: ME/CFSnow I consider myself to have moderate -mild ME (leaning toward mild) In context ↗
  • At worst: Severewhen my symptoms were severe I couldn't even look at screens. super light/sound sensitive. In so much pain. In context ↗
  • Now: Much betteri used to have more severe symptoms but now I consider myself to have moderate -mild ME (leaning toward mild) In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

A Reddit user with ME/CFS said they used to have more severe symptoms, when they could not even look at screens, were super sensitive to light and sound, and were in a lot of pain. They now consider themselves to have moderate to mild ME, leaning toward mild, and mostly post simple pictures with words or videos of themselves in bed talking.

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Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
—severe ME symptomswhen my symptoms were severe I couldn't even look at screens. super light/sound sensitive. In so much pain. In context ↗Severe
2025-12-19improved to moderate-mild MEnow I consider myself to have moderate -mild ME (leaning toward mild). In context ↗Mild

Symptoms mentioned

Their words about their symptoms

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