Long COVID with severe insomnia, now about 90% back to normal after electrolytes and pacing
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- Not stated
- Last post
- Sep 2024
In their words
- Condition: Long COVID
my long covid symptoms started because I pushed myself too hard after getting over the acute infection phase
In context ↗ - Now: Near normal
I'm about 90% recovered and a huge part of the reason for my recovery was getting serious about electrolytes.
In context ↗ - Began after: COVID
my long covid symptoms started because I pushed myself too hard after getting over the acute infection phase
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Beech 42237 thought their long COVID symptoms began after pushing too hard once the acute infection passed. By 2023 they reported about 90% recovery, crediting electrolytes as a huge part, along with red light, fish oil, short relaxed walks, pacing and a gluten-free diet. Prayer, meditation, sleep hygiene and Wim Hof breathing helped them cope. They struggled with severe insomnia unless ADHD medication was taken early.
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What they tried
What they credit
Also tried
Their words about each treatment
- Prayer · Helped
Prayer is *huge* for me.
In context ↗ - Meditation · Helped
Also meditation.
In context ↗ - Learning to say "no" / pacing · Helped
Learning to say "no" ... I simply do not have the physical or emotional bandwidth.
In context ↗ - Sleep hygiene · Helped
Getting enough sleep and higher quality sleep.
In context ↗ - Very light exercise and short relaxed walks · Helped
Very short and relaxed walks in the morning.
In context ↗ - Wim Hof breathing method · Helped
The breathing method itself, though, is great!
In context ↗ - Cold showers (part of Wim Hof method) · Not said
I started the cold showers part of it 3 days ago and I'm still not sure either way on those
In context ↗ - No gluten · Helped
I also have seen improvement with no gluten.
In context ↗ - Electrolytes (salt, potassium, magnesium) · Helped a lot
a huge part of the reason for my recovery was getting serious about electrolytes
In context ↗ - Red-light (NIR and IR) therapy · Helped
Red-light (really NIR and IR) therapy.
In context ↗ - Hyperbaric oxygen therapy · Not said
Hyperbaric oxygen therapy.
In context ↗ - ADHD meds · Not said
I still use ADHD meds occasionally, but it's at much lower doses and in a much more cautious way than I used to use them.
In context ↗
Approaches: POTS medication · Alternative therapies · Diet · Exercise and activity · Mind-body practices · Pacing · Radical rest · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID symptoms after pushing too hard post-infectionmy long covid symptoms started because I pushed myself too hard after getting over the acute infection phaseIn context ↗ | Mild |
| 2023-05-22 | got from bad to less bad with electrolytes, red light, fish oil, walks and pacingElectrolytes. Red-light (really NIR and IR) therapy. Fish oil. Very short and relaxed walks in the morning. Pacing.In context ↗ | Mild |
| 2023-09-07 | about 90% recovered, largely from electrolytesI'm about 90% recovered and a huge part of the reason for my recovery was getting serious about electrolytes.In context ↗ | Near normal |
| 2024-09-26 | still needing ADHD meds early to avoid severe insomnia; lower dosesunless I take my ADHD meds very early in the morning I struggle with severe insomniaIn context ↗ | Near normal |
Adverse events
- Stimulants (unspecified)“I told my doctor years ago I thought I had cyclothymia when I found out about it--then I got long COVID and had to stop taking my ADHD meds for 2 years. Within about 6 months my hypomania COMPLETELY went away.” In context ↗ Mood or psychiatric effects
- Stimulants (unspecified)“Ironically, unless I take my ADHD meds very early in the morning I struggle with severe insomnia” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Very light exercise. (If I overdo it then does more harm than good.)
In context ↗ - Sleep problems
I struggle with severe insomnia and the cycle of poor sleep > bad symptoms repeats itself
In context ↗ - Brain fog
when I got consistently good sleep many of my severe ADHD symptoms dissipated. (Brain fog, interrupting others when speaking, time blindness, difficulty focusing
In context ↗ - Anxiety & low mood
Procrastination is such a destructive force and it has caused so much anxiety and worry.
In context ↗
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