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Long COVID Moderate → relapsedIll 3 years before improving or writingNeeds ongoing treatment

Long COVID faded to 100%, then symptoms returned; Ivabradine helped POTS

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Nov 2024
In their words
  • Condition: Long COVIDI got covid, had lingering symptoms that’s started to fade after about 6 months In context ↗
  • At worst: Moderateand when you’re fogging and exhausted cooking is the worst In context ↗
  • Now: RelapsedI went back to 100% capacity that summer and now i’m 3 years in with little to no improvement. In context ↗
  • Began after: COVIDI got covid In context ↗
Read from 4 of their posts and comments; links to the 3 this page draws on

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Summary

Had COVID-19 with lingering symptoms that started to fade after about six months, and returned to 100% capacity that summer. Since then they reported being three years in with little to no improvement, exhausted by cooking, alongside food allergies/reactions. Ivabradine, covered by US insurance, gave a lot of success for POTS/dysautonomia.

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What they tried

Also tried

smoothies with collagen powder and powdered supplements· Helpedivabradine· Helped
Their words about each treatment
  • smoothies with collagen powder and powdered supplements · HelpedI’ve found smoothies are my solution. In context ↗
  • ivabradine · Helpedi’ve also had a lot of success with ivabradine for what it’s worth (pots/dys) and my insurance covers it (US). In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
onsetCaught COVID-19Not stated
after about 6 monthsLingering symptoms began to fadehad lingering symptoms that’s started to fade after about 6 months In context ↗Not stated
that summerBack to 100% capacityI went back to 100% capacity that summer In context ↗Recovered
2024-11-09Three years in with little to no improvementnow i’m 3 years in with little to no improvement In context ↗Moderate

Symptoms mentioned

Their words about their symptoms
  • Brain fogwhen you’re fogging and exhausted cooking is the worst In context ↗
  • Mast cell (MCAS) & allergiesthe food allergies/reactions are so fing annoying In context ↗
  • POTS & dysautonomiai’ve also had a lot of success with ivabradine for what it’s worth (pots/dys) In context ↗

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