How a Young Event Manager Beat Severe ME/CFS: What Worked For Danielle
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving
- 5 years
- Published
- No date given
In their words
- Condition: ME/CFS
suffered from chronic fatigue for over a decade
Watch the video ↗From the video’s captions - At worst: Severe
if I hadn't become bedbound for a full year
Watch the video ↗From the video’s captions - Now: Recovered
after her decade long journey is fully recovered
Watch the video ↗From the video’s captions - Began after: stress or burnout
the job became really stressful because there was um a bomb in in Manchester Arena
Summary
Danielle Heap had chronic fatigue for about five years, with crashes twice a year and a year bedbound from late 2020. In early 2022 she began the 12-week CFS School program of brain retraining and trauma work, and she credits it with starting her recovery, along with conscious connected breathwork. She now walks for hours in the hills without crashing afterwards and works full time. She describes herself as fully recovered.
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What they tried
What they credit
Also tried
Their words about each treatment
- CFS School · Helped a lot
CFS school was like an amazing like start to my healing
Watch the video ↗From the video’s captions - trauma work · Helped
and then like going into trauma work as well
Watch the video ↗From the video’s captions - conscious connected breath work · Helped a lot
where I am now is because of the conscious connected breathing
Watch the video ↗From the video’s captions - walking, gauged with the CFS School tools · Helped
I just saw my the progression start to to go up in how long I could walk
Watch the video ↗From the video’s captions - energy healing (raiki training) · Helped a lot
energy healing has been a massive part of my healing as well
Watch the video ↗From the video’s captions - inner child work · Not said
inner child work is such a beautiful practice
Watch the video ↗From the video’s captions
Approaches: Alternative therapies · Brain retraining · Mind-body practices · Physiotherapy and rehab · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3.5 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2017 | Work stress after Manchester Arena bomb; crashes twice a year, bedbound six weeks eachI then started experiencing crashes twice a year um where I wouldn't be able to get out of bed for like six weeksWatch the video ↗From the video’s captions | Not stated | |
| end of 2020 | Crash she did not recover from; bedbound for a year, partner did everythingat the end of 2020 I then became bed bound like I had one of my crashes and I just didn't get betterWatch the video ↗From the video’s captions | Severe | |
| beginning of 2022 | CFS School and breathwork; walking distance grewI just saw my the progression start to to go up in how long I could walkWatch the video ↗From the video’s captions | Not stated | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| nearly two years after starting CFS School | Walks for hours without crashes, works full-timeI go walking out there in the countryside for hours and I don't have any like issues afterwards like I don't have any crushes or anything and I'm back working full-timeWatch the video ↗From the video’s captions | Recovered | Meditation, yoga, breathwork |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I don't have any like issues afterwards like I don't have any crushes or anything
Watch the video ↗From the video’s captions - Anxiety & low mood
I got diagnosed with depression and anxiety
Watch the video ↗From the video’s captions
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