ME/CFS
Mild → no benefitIll for 13 years
Mostly homebound and almost out of work, still mostly homebound despite rest and vitamins
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 13 years
- Last post
- Apr 2021
In their words
- Condition: ME/CFS
only just realized that I have CFS this week
In context ↗ - At worst: Mild
I think for the most part I have it pretty mild and am able to manage it okay
In context ↗ - Now: No benefit
for the last three weeks I have been suffering from a major crash that has put me almost completely out of work and left me mostly homebound
In context ↗ - Began after: nothing they could name
I have struggled with what I believe to be CFS for over a decade (since my mid-twenties)
In context ↗
Summary
Badger 26217, a 38-year-old woman, had what she believed was CFS for over a decade since her mid-twenties, mostly managing to work, cook and go out while needing 2+ hour naps almost daily. In April 2021 a bad crash left her mostly homebound and almost completely out of work, as had happened once about two years before. She rested, ate well and took her vitamins, and three weeks later was still mostly homebound.
Ask Miruvor AI
What they tried
Also tried
vitamins· Not saideating three full good/healthy meals a day· Not saidtaking it easy and resting· Not saidrunning· Not said
Their words about each treatment
- vitamins · Not said
yes to all; I am very careful about eating three full good/healthy meals a day and taking my vitamins
In context ↗ - taking it easy and resting · Not said
if I do have a single day where I'm feeling okay, I try to spend it resting as opposed to pushing myself and going to work
In context ↗ - running · Not said
I've even started taking up running again, for the first time in many years.
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| mid-twenties (~2008) | Onset of fatigue she believes is CFSI have struggled with what I believe to be CFS for over a decade (since my mid-twenties)In context ↗ |
| about 1.5-2 years before April 2021 | Previous major crash, mostly homeboundThis has happened once before (about 1.5-2 years ago)In context ↗ |
| early April 2021 | Really bad crash, barely able to get out of bed or workbut only just this week I have had a really bad crash and haven't even been able to get out of bed much, much less go into workIn context ↗ |
| 2021-04-22 | Still in the three-week crash, mostly homebound and out of workfor the last three weeks I have been suffering from a major crash that has put me almost completely out of work and left me mostly homeboundIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I still have been getting tired sometimes, sleeping in more than I would like and having to take 2+ hour naps almost every day
In context ↗ - Post-exertional malaise
from experience I have found that pushing myself under these particular circumstances just tends to make things worse, not better
In context ↗ - Brain fog
have been too fuzzy-headed to be able to focus even if I went
In context ↗